Accès ouvert
2025
review
OpenAlex
Niek Kok, Willemijn Sabien van Erp, Marjan J. Meinders, Jelle L. P. van Gurp
BACKGROUND: Patients with disorders of consciousness (DoC) are unable to partake in the decision making process concerning their treatment. In the process of medical decision-making, which in DoC often concerns life-and-death decisions, surrogates and healthcare professionals may try to reconstruct the treatment …
nl, de
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Accès ouvert
2025
article
OpenAlex
Frouke A. P. Nijhuis, Bas Schippers, Bastiaan R. Bloem, Bart Post et autres
BACKGROUND: Choosing a device-assisted treatment for persons with Parkinson's disease (PwPD) is a complex decision. We developed a shared decision-making (SDM) intervention to facilitate this decision. In this study, we evaluate the feasibility of this intervention from the patients' perspective. METHODS: We …
nl
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Accès ouvert
2024
article
OpenAlex
Jules M. Janssen Daalen, Isabel R. Straatsma, Jeroen W.H. van Hees, Veerle A. van de Wetering‐van Dongen et autres
BACKGROUND: Respiratory dysfunction is an important contributor to morbidity and mortality in advanced Parkinson's disease (PD), but it is unclear what parameters are sensitive to diagnose and monitor respiratory dysfunction across disease phases. OBJECTIVES: We aimed to characterize respiratory dysfunction in mild …
nl, ca
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Accès ouvert
2024
article
OpenAlex
Herma Lennaerts‐Kats, Laura Daeter, Anoek Forkink, Renate K. Hukema et autres
ABSTRACT: BACKGROUND: For people with a moderate stage of Parkinson disease (PD), dedicated care coordination combined with advance care planning (ACP) is highly needed. However, evidence is lacking. The objective of this study was to assess the feasibility and acceptability of the …
il, nl, us
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Accès ouvert
2024
article
OpenAlex
Jules M. Janssen Daalen, Marjan J. Meinders, Soania Mathur, Hieronymus W. H. van Hees et autres
BACKGROUND: Parkinson's disease (PD) is a neurodegenerative disease for which no disease-modifying therapies exist. Preclinical and clinical evidence suggest that repeated exposure to intermittent hypoxia might have short- and long-term benefits in PD. In a previous exploratory phase I trial, we demonstrated …
nl, ca
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Accès ouvert
2023
conference-abstract
OpenAlex
Willanka Kapelle, Angelika D. Geerlings, Bastiaan R. Bloem, Marjan J. Meinders et autres
Introduction: Given the desirable move towards more personalized care management, new ways of involving patients and their caregivers in redesigning care are needed. One important tool is co-creation, which enables patients and their caregivers to play a key role in the design, …
nl, us
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Accès ouvert
2023
article
OpenAlex
Jules M. Janssen Daalen, Werner J.H. Koopman, Christiaan G. J. Saris, Marjan J. Meinders et autres
Parkinson's disease (PD) is a progressive neurodegenerative disorder for which only symptomatic treatments are available. Both preclinical and clinical studies suggest that moderate hypoxia induces evolutionarily conserved adaptive mechanisms that enhance neuronal viability and survival. Therefore, targeting the hypoxia response pathway might …
nl
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Accès ouvert
2023
article
OpenAlex
Angelika D. Geerlings, Willanka Kapelle, Charlotte J. Sederel, Emma Tenison et autres
BACKGROUND: Providing informal care for a person with Parkinson's disease (PD) can be a demanding process affecting several dimensions of a caregiver's life and potentially causing caregiver burden. Despite the emerging literature on caregiver burden in people with PD, little is known …
nl, gb
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Accès ouvert
2023
letter
OpenAlex
Jules M. Janssen Daalen, Marjan J. Meinders, Isabel R. Straatsma, Philip Neil Ainslie et autres
Background Introduction In recent years, increasing attention has been given to hypoxia-based treatment for persons with neurodegenerative and mitochondrial disease, as reflected by the significant rise in publications from basic [1], preclinical [2] and clinical [3, 4] research groups. Hypoxia treatment is …
nl, ca
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Accès ouvert
2023
article
OpenAlex
Luc J. W. Evers, José M Peeters, Bastiaan R. Bloem, Marjan J. Meinders
Background: Digital tools such as wearable sensors may help to monitor Parkinson's disease (PD) in daily life. To optimally achieve the expected benefits, such as personized care and improved self-management, it is essential to understand the perspective of both patients and the …
nl
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Accès ouvert
2023
article
OpenAlex
Marjan J. Meinders, William J. Marks, Sabine B.M. van Zundert, Ritu Kapur et autres
Contains fulltext : 293886.pdf (Publisher’s version ) (Open Access)
nl
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Accès ouvert
2023
review
OpenAlex
Angelika D. Geerlings, Jules M. Janssen Daalen, Jan H. L. Ypinga, Bastiaan R. Bloem et autres
BACKGROUND: There is no systematic insight into the effect of case management on common complications of chronic diseases, including depressive symptoms and symptoms of anxiety. This is a significant knowledge gap, given that people with a chronic disease such as Parkinson Disease …
nl
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