Implementing Advance Care Planning and Care Coordination in the Care for People With Parkinson Disease: A Feasibility Study
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Le résumé fourni par la source
ABSTRACT: BACKGROUND: For people with a moderate stage of Parkinson disease (PD), dedicated care coordination combined with advance care planning (ACP) is highly needed. However, evidence is lacking. The objective of this study was to assess the feasibility and acceptability of the study processes to inform a larger randomized controlled trial, aiming the effectiveness of a combined intervention on ACP and care coordination for people with PD. METHODS: Two nurse practitioners with expertise in PD followed training on a combined intervention on ACP and care coordination. Patients were invited to participate in several sessions for a period of 12 months. Feasibility of the study was surveyed covering sample recruitment, attrition rate, eligibility, intervention delivery, number of ACP sessions, type of intervention administration, and satisfaction with the intervention. RESULTS: In total, 27 patients were invited to participate, and 20 (74%) enrolled into the study, together with 11 family caregivers; 7 patients (35%) dropped out. Most patients were men (n = 20), with a mean age of 73.4 (SD 8.2) years. In total, 71 ACP sessions were held (3.6 sessions per patient on average), of which 41% of the sessions were conducted face-to-face at home, 44% at the hospital, 11% over telephone, and 4% via a videoconference call. Patients perceived the intervention not only as supportive but also as confronting. CONCLUSION: The ACP aspect of the intervention was useful and feasible to stimulate patients to think about their current care situation as well as about future care. Care coordination was less profoundly provided and discussed.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Implementing Advance Care Planning and Care Coordination in the Care for People With Parkinson Disease: A Feasibility Study
- Date Crossref
- 16/08/2024
- Éditeur
- Ovid Technologies (Wolters Kluwer Health)
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Radboud University Nijmegen pays non établi dans la noticeUniversité ou école supérieure
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Radboud University Medical Center Donders Institute for Brain pays non établi dans la noticeOrganisme public
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Erasmus MC pays non établi dans la noticeÉtablissement de santé
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Streekziekenhuis Koningin Beatrix pays non établi dans la noticeÉtablissement de santé
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Author Contributions: H.L.-.K: research project – conception pays non établi dans la noticeInstitution
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Supplemental digital content is available for this article. Direct URL citations appear in the printed text and are provided in the HTML and PDF versions of this article on the journal’s Web site (www.jnnonline.com) pays non établi dans la noticeInstitution
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Erasmus Medical Center Department of Neurology pays non établi dans la noticeÉtablissement de santé
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Anoek Forkink pays non établi dans la noticeInstitution
Radboud University Nijmegen, Donders Institute for Brain — Radboud University Medical Center et Erasmus MC, avec 5 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.