Vicki Ann Jackson

Avoidance: Exposure Therapy Informed Communication for Serious Illness Care

Danielle Chammas, Vicki Ann Jackson, Keri Oxley Brenner

Patients facing serious illness may respond to distressing medical information with avoidance or denial, limiting their ability to engage in values-based decision-making. Exposure therapy-an evidence-based psychological treatment for anxiety disorders-offers conceptual tools that can inform communication and therapeutic approaches with patients who …

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Domains of prognostic awareness, quality of life, and psychological distress in patients with advanced cancer

Hermioni Lokko Amonoo, Joely A. Centracchio, Claire Greydanus, Mitchell W. Lavoie et autres

INTRODUCTION: Prior studies have shown mixed findings regarding the relationship between prognostic awareness with quality of life (QOL) and psychological distress in patients with advanced cancer. Prognostic awareness is a multidimensional construct including a cognitive component (ie, the ability to understand one's …

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Blended palliative and survivorship care intervention (POISE) for patients with metastatic oncogene-driven non-small cell lung cancer: study protocol for a pilot randomised controlled trial

Heather Richard, Roshni Sarathy, Dustin John Rabideau, Jill Feldman et autres

Introduction Patients with metastatic oncogene-driven non-small cell lung cancer (NSCLC) are experiencing longer and uncertain trajectories of life-limiting illness due to advances in precision medicine. These advanced cancer survivors face new challenges related to living with uncertainty and desire more support to …

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Prognostic communication, psychological distress, and caregiving burden among caregivers of patients with decompensated cirrhosis

Lucinda Li, John Donlan, Lina Nurhussien, Nora Horick et autres

Caregivers play a critical role in supporting patients with decompensated cirrhosis (DC) while often also enduring psychological distress themselves. Despite caregivers' essential role in medical decision-making, no studies have examined the associations of caregiver-hepatologist prognostic communication with caregivers' psychological outcomes. In this …

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Multisite Randomized Trial of Inpatient Palliative Care Intervention for Patients Undergoing Hematopoietic Stem Cell Transplantation

Areej R El-Jawahri, Thomas William LeBlanc, Alison R. Kavanaugh, Jason A. Webb et autres

PURPOSE Patients undergoing hematopoietic stem cell transplantation (HSCT) and their caregivers endure immense physical and psychological symptoms, which result in quality-of-life (QOL) impairments during HSCT. METHODS We conducted a multisite randomized trial among adults undergoing autologous or allogeneic HSCT at three academic …

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Comparative effectiveness of delivering early palliative care via video versus in-person on end-of-life outcomes in patients with advanced lung cancer.

Jessica Ruth Bauman, Areej R El-Jawahri, Simone P. Rinaldi, Vicki Ann Jackson et autres

1649 Background: Findings from our prior large-scale comparative effectiveness trial showed the equivalent effect of delivering early palliative care via video versus in-person on quality of life among patients with advanced non-small cell lung cancer (NSCLC). We now report on whether the …

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Blended survivorship and palliative care for patients with advanced lung cancer receiving targeted therapy: An open pilot.

Laura A. Petrillo, Roshni Sarathy, Heather Richard, Lecia Van Dam Sequist et autres

1634 Background: Targeted therapy improves survival and quality of life for patients with advanced non-small cell lung cancer (NSCLC) with driver alterations. However, advanced NSCLC remains incurable, and the timing of progression on targeted therapy is unpredictable. Thus, many patients live with …

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Perceptions of Patient-Clinician Communication Among Adults With and Without Serious Illness

Carine Davila, Sarah S. Nouri, Stephanie H. Chan, Brian Feltz et autres

Importance: High-quality, person-centered patient-clinician communication is critical in health care and may be less effective for patients with serious illness. Little is understood about differences in patient-clinician communication experiences of adults with and without serious illness. Objectives: To determine whether perceptions of …

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Factors associated with early quality-of-life response to palliative care during hematopoietic cell transplantation

Richard A. Newcomb, Hermioni Lokko Amonoo, Alison R. Kavanaugh, Kristin C. Wharton et autres

ABSTRACT: Limited data exist on factors associated with early quality-of-life (QOL) response to palliative care (PC) in patients undergoing hematopoietic cell transplantation (HCT). We conducted a secondary analysis from 2 randomized clinical trials of PC vs usual care in adults with hematologic …

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Factors Associated with Early Quality of Life Response to Palliative Care during Hematopoietic Cell Transplantation

Richard Andrew Newcomb, Hermioni Lokko Amonoo, Ali Rhodes Kavanaugh, James A. Fausto et autres

Background Integrated specialty palliative care (PC) during hematopoietic cell transplantation (HCT) improves quality of life (QOL). However, limited data exist on factors associated with early QOL response to PC during HCT. Methods We conducted secondary analyses of two randomized clinical trials of …

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Characterizing Challenges and Opportunities in Diagnostic Disclosure Communication in Dementia Care: A Qualitative Study of Clinicians

Joanna Paladino, Heily Chavez Granados, Deborah Blacker, Ana‐Maria Vranceanu et autres

Abstract Background Dementia is a life‐changing condition for patients and caregivers. Response to a diagnosis often includes grief, shock, and despair. Unfortunately, evidence demonstrates inadequate use of person‐centered communication practices during diagnostic disclosure, which adds to psychological distress. Structured, person‐centered communication interventions …

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Prognostic Communication, Symptom Burden, Psychological Distress, and Quality of Life Among Patients With Decompensated Cirrhosis

John Donlan, Alyson J. Kaplan, Alan Noll, Kedie Pintro et autres

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