Toward ethical provenance tracking: The GA4GH model data access agreement (DAA)
Alexander Bernier, Bartha Maria Knoppers, Jonathan Lawson, Robyn McDougall et autres
1 citationGenetics in Medicine
Bartha Maria Knoppers
Informations fournies par OpenAlex. Research Africa ne déduit ni nationalité, ni poste, ni coordonnées personnelles.
54Publications signalées
7975Citations signalées
3Affiliations récentes
Institutions déclarées
Domaines associés
Ethics in Clinical ResearchReproductive Health and TechnologiesScience, Research, and MedicineNutrition, Genetics, and DiseaseBiotechnology and Related Fields
Publications récentes
Genomic Newborn Screening: A Scoping Review of the Field’s Evolution and Associated Ethical, Legal, and Social Implications
G. Brown, L. Osornio Walker, Mutiat Afolabi, Paul Bain et autres
1 citationSSRN Electronic Journal
Vérité et information de la personne
0 citationsRevue générale de droit
Where Next for Genetics and Genomics?
Chris Tyler‐Smith, Huanming Yang, Laura F. Landweber, Ian Dunham et autres
26 citationsPLoS Biology
Demographic history and rare allele sharing among human populations
Brenna M. Henn, Ryan N. Gutenkunst, Amit Indap, Gábor Marth et autres
736 citationsProceedings of the National Academy of Sciences
A map of human genome variation from population-scale sequencing
Richard Durbin, David L. Altshuler, Gonçalo R. Abecasis, David Bentley et autres
550 citationsResearch at the University of Copenhagen (University of Copenhagen)
Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies
Isabel Fortier, Paul R. Burton, Paula J. Robson, Vincent Ferretti et autres
181 citationsInternational Journal of Epidemiology
DataSHIELD: resolving a conflict in contemporary bioscience--performing a pooled analysis of individual-level data without sharing the data
Michael Wolfson, Susan Wallace, Nicholas G. D. Masca, Geoffrey M. Rowe et autres
185 citationsInternational Journal of Epidemiology
Reproductive Genetics: Canadian and European Perspectives
Bartha Maria Knoppers, Sonia Le Bris
9 citationsFetal Diagnosis and Therapy
NIH Workshop Statement
Mark I. Evans, Elizabeth J. Thomson, Karen Rothenberg, Ruth Schwartz Cowan et autres
0 citationsFetal Diagnosis and Therapy
Haemophilia gene therapy: the patients’ perspective
Irina Costea, Rosario Isasi, Bartha Maria Knoppers, David Lillicrap
11 citationsHaemophilia
Governing stem cell banks and registries: Emerging Issues
Rosario Isasi, Bartha Maria Knoppers
47 citationsStem Cell Research
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