Chris Kaposy

Finding Medical Photographs of Patients Online: Randomized, Cross-Sectional Study

Zack Marshall, Maushumi Bhattacharjee, Meng Wang, Abdul Cadri et autres

BACKGROUND: Photographs from medical case reports published in academic journals have previously been found in online image search results. This means that patient photographs circulate beyond the original journal website and can be freely accessed online. While this raises ethical and legal …

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From Baby Doe to Selective Termination for Down Syndrome

Chris Kaposy

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Finding Medical Photographs of Patients Online: Randomized, Cross-Sectional Study (Preprint)

Zack Marshall, Maushumi Bhattacharjee, Meng Wang, Abdul Cadri et autres

BACKGROUND Photographs from medical case reports published in academic journals have previously been found in online image search results. This means that patient photographs circulate beyond the original journal website and can be freely accessed online. While this raises ethical and legal …

The Beautiful Unwanted

Chris Kaposy

Chris Kaposy reflects on parenting his son with Down syndrome in the midst of a supposed disappearance of people with this condition. Writing from a pro-choice, disability-positive perspective, Kaposy presents decades-old bioethical controversies, revealing the prehistory that has shaped current attitudes toward …

Patient photographs on Google Images: a commentary on informed consent, copyright, and privacy laws

Maushumi Bhattacharjee, Chris Kaposy, Maura R. Grossman, Zack Marshall

Patient photographs published in medical journals have been found on Google Images in two studies, raising concerns about informed consent and patient privacy. It is unlikely that patient informed consent includes consideration of these circumstances, as there are no uniform guidelines for …

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Thoughts on supporting healthcare ethics leadership, by the editors of Impact Ethics

Chris Kaposy, Angel Petropanagos

Impact Ethics ( www.impactethics.ca ) is a Canadian bioethics blog with a diversity of contributors who come from a range of backgrounds – from academics and clinicians to activists and concerned citizens. Our authors are also diverse with respect ethnicity, race, culture, …

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Prospects for limiting access to prenatal genetic information about Down syndrome in light of the expansion of prenatal genomics

Chris Kaposy

Down syndrome (Trisomy 21) is a mild to moderate intellectual disability. Historically, this condition has been a primary target for prenatal testing. However, Down syndrome has not been targeted for prenatal testing because it is an especially severe illness. The condition was …

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An Expressivist Disability Critique of the Expansion of Prenatal Genomics

Chris Kaposy

Abstract Prenatal genomics appears to be on an expansive trajectory toward universally-available, routine, whole-genome prenatal sequencing. But for people living with disabilities, this expansion of prenatal genomics may not be a welcome development. This chapter explores some of the objections arising from …

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When Relational Theory Is Absent from Qualitative Health Research

Chris Kaposy

How research ethics boards should monitor clinical research

Ramseyer Apau Bediako, Chris Kaposy

The objective of this commentary is to provide a framework and ethical justification for a more proactive model of continual, active monitoring of research. We outline what the increased monitoring should consist of, and the practical constraints associated with executing these monitoring …

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Documenting Research with Transgender, Nonbinary, and Other Gender Diverse (Trans) Individuals and Communities: Introducing the Global Trans Research Evidence Map

Zack Marshall, Vivian Andrea Welch, Alexa Minichiello, Michelle Swab et autres

There is limited information about how transgender, nonbinary, and other gender diverse (trans) people have been studied and represented by researchers. The objectives of this study were to: (1) increase access to trans research; (2) map and describe trans research across subject …

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Why People with Cognitive Disabilities are Justified in Feeling Disquieted by Prenatal Testing and Selective Termination

Chris Kaposy

Abstract People with cognitive disabilities and their advocates often express uneasiness about prenatal testing and the selective termination of pregnancies because the fetus has a cognitively disabling condition. There are high rates of abortion in such circumstances, and new forms of noninvasive …

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