Sivia Lapidus

Validation of Patient‐Reported Outcomes Measurement Information System ( PROMIS ) Pediatric Measures for Children With Chronic Nonbacterial Osteomyelitis

Mary M. Eckert, Eveline Y. Wu, Melissa S. Oliver, Joshua Scheck et autres

OBJECTIVE: To assess the validity of the Patient-Reported Outcomes Measurement Information System (PROMIS) Pediatric measures in patients with chronic nonbacterial osteomyelitis (CNO). METHODS: Within the longitudinal patient registry of CNO, English-speaking patients aged 8 years and older self-reported PROMIS Pediatric measures of …

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Development and validation of minimal disease activity, disease flare, and minimal clinically important difference for children with chronic nonbacterial osteomyelitis using a consensus and data-driven approach

Farzana Nuruzzaman, Natalie Rosenwaser, Xing Wang, Jonathan D. Akikusa et autres

us, au, ca, tr (code pays fourni par la source)

Clinical Practice Variation Among Pediatric Rheumatologists Treating Kawasaki Disease: Results of a North American Survey

Daniel Ibanez, Bianca A. Lang, Julia Shalen, Ali Yalçindağ et autres

Background: The best treatment for children with KD who fail to respond to the first dose of IVIG (refractory KD) is currently unknown. The purpose of this study was to determine treatment practices of pediatric rheumatologists in North America who manage IVIG-refractory …

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Identifying domains for CNO and SAPHO: A scoping review to create domains from existing outcomes by the OMERACT CNO and SAPHO working group

Melissa S. Oliver, Farzana Nuruzzaman, Aleksander Lenert, Arundathi Jayatilleke et autres

us, es, ca, it, sa, tr, gb, au (code pays fourni par la source)

Long-term safety of canakinumab in patients with systemic juvenile idiopathic arthritis: 5-year results from the Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry

Alis Burciu, Amita Bansal, Anne C. Dennos, Deepak Narayanswamy et autres

BACKGROUND: Systemic juvenile idiopathic arthritis (SJIA) is a severe form of juvenile idiopathic arthritis characterized by fever, rash, chronic arthritis, and systemic inflammation. The introduction of biologics has improved the treatment options for SJIA. Canakinumab selectively inhibits interleukin-1β and is approved for …

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EULAR /American College of Rheumatology Classification Criteria for Pediatric Chronic Nonbacterial Osteomyelitis

Yongdong Zhao, Melissa S. Oliver, Anja Schnabel, Eveline Y. Wu et autres

OBJECTIVE: To develop and validate classification criteria for pediatric chronic nonbacterial osteomyelitis (CNO) jointly supported by EULAR and the American College of Rheumatology (ACR). METHODS: This international initiative had 4 phases: (1) candidate items were proposed in a survey of pediatric rheumatologists, …

us, de, it, au, tr, gb, br, ca, ru, Égypte, cz, nz, es (code pays fourni par la source)

Living with a systemic autoinflammatory disease: burden of disease and effects on quality of life—an international patient survey

Maryam Ashoor, Kosar Asnaashari, Nicole Tennermann, Sivia Lapidus et autres

Objectives: Systemic autoinflammatory diseases (SAIDs) significantly impact patients' and their families' quality of life (QoL). This international study aimed to evaluate the extent of this burden by gathering patient-reported data on their SAIDs and its effects on daily living and well-being. Methods: …

us, bh, au, ir, ca, nl (code pays fourni par la source)

Features Associated with Response to Tonsillectomy in Periodic Fever, Aphthous Stomatitis, Pharyngitis, and Cervical Adenitis Syndrome in Children

Kalpana Manthiram, Ana Maria Ortega‐Villa, Sivia Lapidus, Mary Bowes et autres

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EULAR/ACR classification criteria for paediatric chronic nonbacterial osteomyelitis (CNO)

Yongdong Zhao, Melissa S. Oliver, Anja Schnabel, Eveline Y. Wu et autres

OBJECTIVES: To develop and validate classification criteria for paediatric chronic nonbacterial osteomyelitis (CNO) jointly supported by the European Alliance of Associations for Rheumatology (EULAR) and the American College of Rheumatology (ACR). METHODS: This international initiative had 4 phases: (1) candidate items were …

us, de, it, au, tr, gb, br, ca, ru, Égypte, cz, nz (code pays fourni par la source)

Identifying Domains for Cno and Sapho: A Scoping Review to Create Domains from Existing Outcome Measures by the Omeract Cno and Sapho Working Group

Melissa S. Oliver, Farzana Nuruzzaman, Aleksander Lenert, Arundathi Jayatilleke et autres

us, ca, tr, gb (code pays fourni par la source)

Implementation study of the CARRA Uveitis Consensus Treatment Plans: feasibility for clinical practice and applicability for research

Margaret H. Chang, Fatima A. Barbar-Smiley, Shoghik Akoghlanian, Joanne Drew et autres

BACKGROUND: Chronic anterior uveitis (CAU) carries a significant risk for eye complications and vision loss. The Childhood Arthritis and Rheumatology Research Alliance (CARRA) introduced consensus treatment plans (CTPs) to standardize treatment for CAU and facilitate future comparative effectiveness studies. Two CTPs were …

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POS1197 VALIDATION OF PATIENT-REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM (PROMIS) QUESTIONNAIRES FOR CHILDREN WITH CHRONIC NONBACTERIAL OSTEOMYELITIS USING THE CHOIR DATA

Yongdong Zhao, M. Eckert, Enxi Wu, M. Norman Oliver et autres

us, tr, it, Égypte, ca, de, au, gb (code pays fourni par la source)