Shahin Shooshtari

Care poverty in Canada: a new look at the care needs of Canadians

Christine Kelly, Md. Aslam Hossain, Jennifer C. H. Sebring, Alexis Lam et autres

Care poverty describes situations where people do not receive enough care due to both individual and structural factors. Care poverty, as a novel concept, is gaining traction internationally, and this article is the first to examine care poverty in the Canadian context. …

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Mental health disorders and suicide risk among autistic children, adolescents and adults: a population-based study using linked administrative data

Deepa Singal, Jennifer Enns, Kevin J. Friesen, Nicholas Piroddi et autres

Background: Autistic people face elevated mental health risks, yet few population-based studies have quantified these risks across developmental stages. We examined the prevalence and relative risk of physician-diagnosed mental health disorders and suicide attempts among autistic individuals in the province of Manitoba, …

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Nutrient Intake and Physical Activity of School-Aged Children with Trisomy 21 Living in Manitoba, Canada

Maria S. Baranowski, Carla G. Taylor, Nancy Hansen, Shahin Shooshtari

Background: Children and adults with Trisomy 21 are more likely to develop nutrition-related conditions and diseases. The nutrition-related health of Canadians with Trisomy 21 is unknown. We aimed to determine the nutrient intake and physical activity of school-aged children with Trisomy 21 …

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Autism, dementia, and post-diagnostic support: A consensus report from the Second International Summit on Intellectual Disabilities and Dementia

Matthew P. Janicki, Philip McCallion, Nancy Jokinen, Frode Larsen et autres

Post-diagnostic support is a critical yet underdeveloped aspect of dementia care, especially for autistic adults who present with distinct cognitive, sensory, and communication needs. Although interventions such as medication management, psychosocial support, environmental modifications, and carer training are known to improve outcomes, …

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Evaluating the impact of a national brain health education course for older adults with intellectual and developmental disabilities and caregivers: Brain Health-IDD Program protocol

Yona Lunsky, Nicole Bobbette, Mary Chiu, Anupam Thakur et autres

INTRODUCTION: Adults with intellectual and/or developmental disabilities (IDD) experience higher rates of age-related health concerns, including dementia, than adults without disabilities. Despite this, current efforts to support brain health in ageing have often excluded this population. To address this gap, we will …

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Prevalence and incidence of autism in children and adolescents in Manitoba, Canada: An updated estimate using population-based administrative health data from 2011 to 2022

Deepa Singal, Jennifer Enns, Kevin J. Friesen, Karen Dorothy Bopp et autres

OBJECTIVES: Estimates of autism prevalence are critical for informing evidence-based decisions, allocating resources, and developing effective strategies to support autistic individuals and their families. In Canada, such estimates remain limited, with the most recent population-based data on autism prevalence and incidence in …

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Intellectual and developmental disabilities (IDD) and cancer symptom reporting: a matched retrospective cohort study

Rachel Giblon, Alyson Mahar, Julie Hallet, Christine Kelly et autres

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Quality of life trajectories in persons with intellectual and developmental disabilities undergoing community transition in Central Canada: A longitudinal repeated measures study

Margherita Cameranesi, Kayla Kostal, Brenden Dufault, Maria Baranowski et autres

BACKGROUND: Strong evidence suggests that, compared to congregate care, dispersed community living offers significant quality of life (QoL) benefits for individuals with intellectual and developmental disabilities. However, it is still unclear whether these improvements apply to all domains of QoL or if …

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Identified Gaps in Nutrition Research and Practice Related to Trisomy 21 and Future Considerations: A Rapid Review.

Maria Baranowski, Shahin Shooshtari

Individuals born with Trisomy 21 may be more susceptible to experiencing nutrition-related conditions and diseases throughout their lifespan. Seven studies conducted outside of Canada that investigated the impact of nutrition interventions in individuals of different ages (mostly children and youth) born with …

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Intellectual and Developmental Disabilities and Cancer Symptom Severity: A Matched Retrospective Cohort Study

Rachel Giblon, Rinku Sutradhar, Julie Hallet, Rebecca Hansford et autres

BACKGROUND: Individuals with intellectual or developmental disabilities (IDD) face increased cancer risks and disparities in cancer care accessibility and quality. Despite these concerns, there is limited research on cancer symptomology among individuals with IDD. AIMS: This study explored differences in cancer symptoms …

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Autism and Dementia: A Summative Report from the 2nd International Summit on Intellectual Disabilities and Dementia

Matthew P. Janicki, Philip McCallion, Nancy Jokinen, Frode Larsen et autres

This article synthesizes findings, from the Autism/Dementia Work Group of the 2nd International Summit on Intellectual Disabilities and Dementia, on the nature of autism/autism spectrum disorder and later-age neuropathologies, particularly dementia. The convened group of experts explored genetic, neurobiological, and environmental risk …

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What Guides Organizations’ Current Dementia-Related Practices Across Four Canadian Provinces?

Maria Baranowski, Nancy Jokinen, Leslie Udell, Sandy Stemp et autres

We conducted a survey to learn what guides current dementia-related practice to support community-dwelling adults with intellectual and developmental disabilities who may be experiencing dementia in Canada. We invited organizations working in health, disability, or senior sectors in 4 Canadian provinces to …

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