Rachel Collins

Dyadic perspectives on loneliness and social isolation among people with dementia and spousal carers: findings from the IDEAL programme

Isla Rippon, Christina Victor, Anthony Martyr, Fiona E. Matthews et autres

OBJECTIVES: This study aims to investigate the impact of self and partner experiences of loneliness and social isolation on life satisfaction in people with dementia and their spousal carers. METHODS: We used data from 1042 dementia caregiving dyads in the Improving the …

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Methods and approaches to facilitate inclusion of the views, perspectives and preferences of people with moderate‐to‐severe dementia in research: A narrative systematic review

Rachel Collins, Anthony Martyr, Anna Hunt, Catherine Quinn et autres

BACKGROUND: The perspectives of people with moderate-to-severe dementia are rarely directly elicited in research studies. OBJECTIVES: This systematic review will explore methods and approaches for including the perspectives and preferences of people with moderate-to-severe dementia in research. METHODS: AgeLine, CINAHL, Embase, PsycINFO, …

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Resilience in caregivers of people with mild-to-moderate dementia: findings from the IDEAL cohort

Anthony Martyr, Jennifer Rusted, Catherine Quinn, Laura D. Gamble et autres

OBJECTIVES: A novel model of resilience was tested in caregivers of people with mild-to-moderate dementia and was extended to explore whether including self-efficacy, optimism, and self-esteem improved its predictive value. DESIGN: Cross-sectional. SETTING: Data from the IDEAL cohort were used. PARTICIPANTS: The …

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Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort

Rachel Collins, Eleanor Dawson, Claire Pentecost, Sally Stapley et autres

We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study …

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Provision of Outdoor Nature-Based Activity for Older People with Cognitive Impairment: A Scoping Review from the ENLIVEN Project

Rachel Collins, Steven Owen, Carol Opdebeeck, Katie Ledingham et autres

The health and well-being benefits of outdoor nature-based activity are increasingly recognised, but older people with cognitive impairment face significant barriers to access. The ENLIVEN project aims to promote access by gathering evidence and coproducing guidance for activity providers. As part of …

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Evaluating ‘living well’ with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire

Linda Clare, Claire Pentecost, Rachel Collins, Anthony Martyr et autres

OBJECTIVES: We aimed to co-produce and validate an accessible, evidence-based questionnaire measuring 'living well' with dementia that reflects the experience of people with mild-to-moderate dementia. METHODS: Nine people with dementia formed a co-production group. An initial series of workshops generated the format …

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‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

Sally Stapley, Claire Pentecost, Rachel Collins, Catherine Quinn et autres

Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to …

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Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort

Eleanor Dawson, Rachel Collins, Claire Pentecost, Sally Stapley et autres

BACKGROUND AND OBJECTIVES: People with dementia have been affected in unique ways during the COVID-19 pandemic. It is not known whether the impact of the pandemic has changed with time or with the changes in social restrictions. This study explored how experiences …

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Provision of outdoor nature-based activity for older people with cognitive impairment: protocol for a scoping review from the ENLIVEN project

Rachel Collins, Steve Owen, Carol Opdebeeck, Katie Ledingham et autres

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Implementing a home-based personalised cognitive rehabilitation intervention for people with mild-to-moderate dementia: GREAT into Practice

Linda Clare, Aleksandra Kudlicka, Rachel Collins, Suzannah Evans et autres

BACKGROUND: Evidence-based rehabilitative interventions, if widely implemented, could equip people with dementia and their families to manage life with the condition and reduce the need for health and care services. The aim of this translational study, building on evidence from the GREAT …

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Living with dementia during the COVID-19 pandemic: insights into identity from the IDEAL cohort

Sally Stapley, Claire Pentecost, Rachel Collins, Catherine Quinn et autres

Abstract The continuing COVID-19 pandemic and social restrictions have impacted on the cognitive decline and mental health of people with dementia. Social isolation and loss of activities due to social restrictions may also have implications as to sense of identity for people …

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Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the IDEAL programme

Serena Sabatini, Anthony Martyr, Laura D. Gamble, Ian Rees Jones et autres

RATIONALE: Research exploring social, cultural, and economic capital among people with dementia is scarce. OBJECTIVE: We describe levels of social, cultural, and economic capital in people with dementia at baseline and levels of social and cultural capital 12 and 24 months later. …

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