Anna E. Martinez

Eliciting health state utilities for open wounds in dystrophic epidermolysis bullosa

Damian Lewis, Adam B. Smith, Marjolijn van Keep, Anna E. Martinez et autres

PURPOSE: Qualitative accounts and studies employing disease-specific outcome measures have demonstrated that people with dystrophic epidermolysis bullosa (DEB) display impaired health-related quality of life (HRQoL) due to wound-related challenges. There is a paucity of utility data necessary to inform the health economic …

gb, be, us (code pays fourni par la source)

Micro-costing of hospital care for patients with recessive dystrophic epidermolysis bullosa in the UK

Elizabeth Pillay, Anita Patel, Anna E. Martinez, Maria L Bageta et autres

gb, in (code pays fourni par la source)

Additional file 1 of Mesenchymal stromal cell infusions of umbilical cord-derived mesenchymal stromal cells in children with Recessive Dystrophic Epidermolysis Bullosa (MissionEB): a qualitative sub study of a randomised, double-blind, placebo controlled, crossover, phase 3 trial

Katie Biggs, Shamila Ditta, Maria L Bageta, Pablo Lopez Balboa et autres

Supplementary Material 1

gb (code pays fourni par la source)

Mesenchymal stromal cell infusions of umbilical cord-derived mesenchymal stromal cells in children with Recessive Dystrophic Epidermolysis Bullosa (MissionEB): a qualitative sub study of a randomised, double-blind, placebo controlled, crossover, phase 3 trial

Katie Biggs, Shamila Ditta, Maria L Bageta, Pablo Lopez Balboa et autres

Abstract Background Recessive Dystrophic Epidermolysis Bullosa (RDEB) is a rare genetic skin condition causing fragile skin, blistering, and scarring. It leads to chronic pain, slow wound healing, and severe limitations, profoundly impacting patient and family quality of life. Umbilical cord tissue-derived mesenchymal …

gb (code pays fourni par la source)

Mesenchymal stromal cell infusions of umbilical cord-derived mesenchymal stromal cells in children with Recessive Dystrophic Epidermolysis Bullosa (MissionEB): a qualitative sub study of a randomised, double-blind, placebo controlled, crossover, phase 3 trial

Katie Biggs, Shamila Ditta, Maria L Bageta, Pablo Lopez Balboa et autres

Abstract Background Recessive Dystrophic Epidermolysis Bullosa (RDEB) is a rare genetic skin condition causing fragile skin, blistering, and scarring. It leads to chronic pain, slow wound healing, and severe limitations, profoundly impacting patient and family quality of life. Umbilical cord tissue-derived mesenchymal …

gb (code pays fourni par la source)

Additional file 1 of Mesenchymal stromal cell infusions of umbilical cord-derived mesenchymal stromal cells in children with Recessive Dystrophic Epidermolysis Bullosa (MissionEB): a qualitative sub study of a randomised, double-blind, placebo controlled, crossover, phase 3 trial

Katie Biggs, Shamila Ditta, Maria L Bageta, Pablo Lopez Balboa et autres

Supplementary Material 1

gb (code pays fourni par la source)

Additional file 4 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 4

gb, au (code pays fourni par la source)

Additional file 1 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 1

gb, au (code pays fourni par la source)

Additional file 3 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 3

gb, au (code pays fourni par la source)

Additional file 1 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 1

gb, au (code pays fourni par la source)

Additional file 2 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 2

gb, au (code pays fourni par la source)

Additional file 3 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 3

gb, au (code pays fourni par la source)