E. Jeffs

Micro-costing of hospital care for patients with recessive dystrophic epidermolysis bullosa in the UK

Elizabeth Pillay, Anita Patel, Anna E. Martinez, Maria L Bageta et autres

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Additional file 4 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 4

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Additional file 1 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 1

gb, au (code pays fourni par la source)

Additional file 3 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 3

gb, au (code pays fourni par la source)

Additional file 1 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 1

gb, au (code pays fourni par la source)

Additional file 2 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 2

gb, au (code pays fourni par la source)

Additional file 3 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 3

gb, au (code pays fourni par la source)

Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Abstract Background Chronic disease, including different forms of epidermolysis bullosa (EB), may significantly impair health-related quality of life (HRQoL). To date, HRQoL in specific subtypes of recessive dystrophic EB (RDEB) has not been studied in depth. Objectives To measure HRQoL in a …

gb, au (code pays fourni par la source)

Additional file 5 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 5

gb, au (code pays fourni par la source)

Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Abstract Background Chronic disease, including different forms of epidermolysis bullosa (EB), may significantly impair health-related quality of life (HRQoL). To date, HRQoL in specific subtypes of recessive dystrophic EB (RDEB) has not been studied in depth. Objectives To measure HRQoL in a …

gb, au (code pays fourni par la source)

Additional file 6 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 6

gb, au (code pays fourni par la source)

Additional file 2 of Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

E. Jeffs, Elizabeth Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera et autres

Supplementary Material 2

gb, au (code pays fourni par la source)