Ala K Szczepura

Understanding the implementation of kidney supportive care interventions to improve palliative care outcomes for adults receiving haemodialysis: protocol for a rapid realist review

Chalani Lasanthika, Barnaby D. Hole, Ala K Szczepura, Ann Bonner et autres

INTRODUCTION: Chronic kidney disease (CKD) is a significant global health concern, contributing substantially to mortality; in advanced stages, adults often require kidney supportive care (KSC), a model of care/intervention that addresses complex palliative and supportive needs. These needs often remain insufficiently addressed, …

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Perceived Acceptability of SPACE for COPD© as a Maintenance Option Following Pulmonary Rehabilitation Discharge: A Qualitative Interview Study with Patients and Facilitators Using Framework Analysis

Amy C. Barradell, Khaled A. Alqahtani, Annabel Hong, Jessica Lapworth et autres

Amy C Barradell,1,2 Khaled Alqahtani,3 Annabel Hong,1 Jessica Lapworth,4 Kathryn Greenall,4 Israa Al-Naabi,4 Ala Szczepura,5 William DC Man,6– 8 Claire M Nolan,9 Gillian Doe,3 Nikki Gardiner,1 Charlotte Gerlis,10 Claire Bourne,2 Sally J Singh,3 Linzy Houchen-Wolloff1– 3 1NIHR Respiratory Biomedical Research Centre, University …

Cost-effectiveness of a self-management maintenance programme following pulmonary rehabilitation: a UK randomised controlled trial for patients with chronic obstructive pulmonary disease

Amir Khan, Anil Gumber, Matthew W. Richardson, Claire M. Nolan et autres

INTRODUCTION: Pulmonary rehabilitation (PR) is an effective intervention for patients with chronic obstructive pulmonary disease (COPD) but impact typically only lasts 6-12 months. This paper presents results of an economic evaluation of a PR maintenance programme (Self-management Programme of Activity, Coping and …

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Cost-effectiveness of SPACE for COPD© Delivered as a Maintenance Programme following Pulmonary Rehabilitation (PR).

Linzy Houchen‐Wolloff, Annabel Hong, K. Alqhatani, Charlotte Gerlis et autres

Introduction: The benefits of PR are known to decline by 12months after the initial programme. Previous maintenance studies have been labour intensive and concentrated on secondary care healthcare utilisation. We aimed to investigate whether SPACE for COPD©, a light-touch self-management programme, was …

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Acceptability of SPACE for COPD© delivered as a maintenance programme following pulmonary rehabilitation discharge

Amy C. Barradell, Jessica Lapworth, Kathryn Greenall, Israa Al-Naabi et autres

Background: Post Pulmonary Rehabilitation (PR), the biopsychosocial benefits often decline. PR maintenance is recommended, however, detail lacks on what this entails. SPACE for COPD© is an evidenced-based self-management intervention which could maintain PR benefits. Aims and objectives: We evaluated the acceptability of …

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Evolution of Long-term Care Neighbourhoods for Older People: The Rhetoric and Reality of Meeting Older People’s Future Care Needs in Japan and England

Ala K Szczepura, Harue Masaki, Deidre Wild, Toshio Nomura et autres

International audience

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Protocol for an eDelphi study to identify consensus on policy metrics which should be included in future assessments of the England Rare Diseases Action Plans

Petra A. Wark, Leeza Osipenko, Josie Godfrey, Lindsay Birrell et autres

ABSTRACT Introduction Governments create policies to address societal needs and then assess their effectiveness through policy metrics. The UK Rare Diseases Framework and its England Rare Diseases Action Plans aim to improve the lives of people with lived experience of rare diseases …

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The Potential for Smart Glasses to Transform Facial Palsy Therapy Globally: UK Budget Analysis, Delphi Outcomes Valuation Exercise, and Economic Modeling of Cost-Effectiveness

Amir Khan, Hema Mistry, Catriona Neville, Helen Martin et autres

Background: Facial palsy is the most common single nerve disorder worldwide. Incidence rates are rising globally, with incomplete recovery producing long-term reductions in quality of life for one in three cases. Facial neuromuscular retraining (fNMR) to restore balanced facial function is the …

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Gender, race and ethnicity biases experienced by hospital physicians: an umbrella review to explore emerging biases in the evidence base

Abby Kendrick, Nithya Santhana Krishnan, Jyoti Baharani, J.E. “Betsy” Tuttle et autres

OBJECTIVES: To examine the authorship and content of systematic reviews (SRs) of biases experienced by medical professionals through a gender lens. DESIGN: Review of SRs. DATA SOURCES: We searched PubMed, Embase, PsycINFO and CINAHL from inception. Searches were conducted in May 2022 …

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PD108 Digital Transformation Of An Organization Supporting Informal Caregivers During Pandemic: Lessons Learned And Future Direction For A Sustainable Solution

Amir Khan, Ala K Szczepura, Deidre Wild, Sara Nelson et autres

Introduction The COVID-19 pandemic has catalyzed a move from face-to-face to online delivery of services by hospitals and primary care providers, but little is known about the impact of digital transformation in organizations supporting unpaid caregivers. The value of care provided by …

PD25 Innovation In Facial Palsy Treatment: The Costs And Benefits Of Telerehabilitation Introduced Into Physical Therapy Pathways

Ala K Szczepura, Amir Khan, Charles C. Nduka, Catriona Neville et autres

Introduction The incidence of facial palsy has been rising worldwide, with recent evidence emerging of links to COVID-19 infection. To date, guidance on cost-effective treatments is limited to medication (prednisolone). In terms of physical therapy, neuromuscular retraining (NMR) to restore balanced facial …

PD24 Innovation In Chronic Obstructive Pulmonary Disease Care: Cost Effectiveness Of A New Self-Management Maintenance Program In The United Kingdom

Anil Gumber, Amir Khan, Matthew Richardson, Annabel Hong et autres

Introduction Innovation is needed for the growing number of patients with chronic obstructive pulmonary disease (COPD). Pulmonary rehabilitation (PR) is effective in improving exercise tolerance and quality of life, but these benefits do not appear to be sustained. This highlights the need …