Accès ouvert
2026
conference-abstract
OpenAlex
Niamh Devane, Abi Roper, Apollo Karkanevatos, Nicola Botting et autres
Poster presented at the International Aphasia Rehabilitation Conference (IARC) in Athens, Greece in July 2026.
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Accès ouvert
2026
conference-abstract
OpenAlex
Niamh Devane, Abi Roper, Apollo Karkanevatos, Nicola Botting et autres
Poster presented at the International Aphasia Rehabilitation Conference (IARC) in Athens, Greece in July 2026.
gb
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Accès ouvert
2026
article
OpenAlex
Claire Bennington, Ciara Shiggins, Jytte Isaksen, Emma Beesley et autres
ABSTRACT Introduction Poor aphasia awareness is an international problem. Previous aphasia awareness campaigns have lacked coordination across countries and have not routinely involved people with the diversity of skills needed to design a campaign. We aimed to co‐design a unified, international aphasia …
au, gb, dk, ch, be, nl, us, cy
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Accès ouvert
2026
article
OpenAlex
Aaron Davis, Ciara Shiggins, Ruby Lipson-Smith, Julie Davey et autres
Healthcare research is increasingly focused on involving patients and the public in service design. This involvement is referred to in many ways, including Patient and Public Involvement (PPI), co-design, co-creation, or co-production. Engaging stakeholders including end-users in research is recognised as best …
au
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2025
article
OpenAlex
Lucette Lanyon, Ciara Shiggins, Cassie Wilcox, John E. Pierce et autres
PURPOSE: Long-term social support is a key protective factor for living well with chronic disabilities. Community Aphasia Groups (CAGs) provide opportunities for connection and recovery. To address service availability challenges, we developed the Hub-and-Spoke, Peer-led CAG program in which a "Hub" of …
au
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Accès ouvert
2025
editorial
OpenAlex
Ruth McMenamin, Jytte Isaksen, Christopher D. Coath, Ciara Shiggins
Patient and Public Involvement (PPI) in research refers to conducting research “with” or “by” the public, rather than “to”, “about”, or “for” them (INVOLVE, n.d.). Many terms are used international...
ie, dk, gb, au
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Accès ouvert
2025
article
OpenAlex
Elizabeth A. Lynch, Stacy Larcombe, Julie A Bernhardt, Brenda M. Booth et autres
OBJECTIVES: To co-design, co-produce and evaluate resources to build the capacity of stroke researchers and people with lived experience of stroke to work together effectively on research projects. METHODS: Following an interactive workshop, a team of health professional researchers, people with lived …
au
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2025
article
OpenAlex
John E. Pierce, Nelson J. Hernandez, Damminda Alahakoon, Anne J. Hill et autres
PURPOSE: Co-design of research and services alongside end users is increasingly required by funding bodies and governments. To enable a meaningful inclusion of people with communication disability, planning and modification are required, as standard co-design procedures involve extensive spoken and written language. …
au, ie
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Accès ouvert
2025
article
OpenAlex
Jennifer Lee, Peter Worthy, Ryan Deslandes, Bridget Burton et autres
Introduction Aphasia is a language impairment that affects one-third of people who experience a stroke. Aphasia can impact all facets of language: speaking, understanding, reading and writing. Around 60% of people with aphasia have persistent language impairments 1 year after their stroke, …
au
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Accès ouvert
2025
article
OpenAlex
Ruby Lipson‐Smith, Aaron Davis, Marcus R. White, Luis Pflaumer et autres
Objectives To provide actionable, co-designed ideas for how to optimize the built environment and service of inpatient stroke rehabilitation facilities. Background Input from diverse stakeholders is needed to ensure that stroke rehabilitation spaces address the unique learning and practice needs of users. …
au, gb
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Accès ouvert
2025
preprint
OpenAlex
Elizabeth A. Lynch, Stacy Larcombe, Julie A Bernhardt, Brenda M. Booth et autres
ABSTRACT Objectives To co-design, co-produce and evaluate resources to build the capacity of stroke researchers and people with lived experience of stroke to work together effectively on research projects. Methods Following an interactive workshop, a team of health professional researchers, people with …
au, it, ca
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Accès ouvert
2025
article
OpenAlex
Claire Bennington, Jytte Isaksen, Ciara Shiggins, Emma Beesley et autres
PURPOSE: Despite many campaigns over the last two decades, aphasia awareness remains low internationally. To address this issue, we aimed to gain multi-stakeholder consensus on the essential elements of an international aphasia awareness campaign. MATERIALS AND METHODS: Online focus groups using the …
au, dk, gb, us, co, sg
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