Augusto Tommaso Caraceni

What matters most? Qualitative insights into factors impacting quality of life in people living with or beyond cancer across Europe (Preprint)

Merel Engelaar, Sara Alfieri, Inke Minnée‐van Braak, F. van Schelven et autres

BACKGROUND Cancer remains a leading cause of morbidity and mortality worldwide. Given its substantial burden, quality of life has become a key outcome in cancer care and research. Patient-reported outcome measures (PROMs) are commonly used to assess quality of life. Although qualitative …

Promoting equitable inclusion in a multi-centre randomized controlled trial on palliative rehabilitation for advanced cancer in Europe: a collaborative synthesis using a ‘world café’ approach

Lise Nottelmann, Joanne Bayly, Matthew Maddocks, Mai‐Britt Guldin et autres

Equity is receiving increasing attention in palliative care. In particular, access to palliative care services and research is a significant challenge for some populations, including ethnic minorities, migrants, socioeconomically disadvantaged groups, and people with disabilities. This study concerns equitable inclusion in a …

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End-of-life care: A retrospective study comparing sarcoma and patients with carcinoma

Luca Zambelli, Giacomo Massa, Francesca Ricchini, Ernesto Zecca et autres

BACKGROUND: Soft tissue and bone sarcomas may carry a considerable symptom burden, which typically worsens in the final weeks of life. To help clarify personalized palliative care needs, we investigated discrepancies in end-of-life management between patients with sarcoma and those with the …

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Adaptation of digital integration of PROMs and PREMs in oncology during implementation: a scoping review

Nuša Farič, Anne-Lore Scherrens, Eveline Raemdonck, Kim Beernaert et autres

PURPOSE: Digital tools facilitate the timely collection of patient-reported outcome and experience measures (ePROMs/PREMs), but there is no consistent reporting on the technical and content adaptations made essential to implementing these digital tools in a specific context. Adaptations made to ePROMs/ePREMs can …

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EU Joint Action: Integrating Palliative Care in the EU Cancer Agenda: Insights From JANE-2

Line Foss, Augusto Tommaso Caraceni, Carlos Centeno, Greta Chlebopaševienė et autres

BACKGROUND: Palliative care is inconsistently integrated into European cancer care, with fragmentation in provision, accessibility, and education leading to avoidable suffering and inefficient use of healthcare resources. There is a need to improve this through a Europe-wide initiative, the Joint Action on …

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Denosumab versus zoledronic acid: analgesic and survival impact of an extended treatment regimen beyond 2 years in breast cancer

Ernesto Zecca, Luca Zambelli, Gabriele Tinè, Paola Bracchi et autres

BACKGROUND: Zoledronic acid (ZA) and denosumab (Dmab) are the standard of care for bone metastases, but there is no consensus on their long-term use. This study was conducted to evaluate treatment patterns (persistence, compliance, modification, and reintroduction of drug therapy), analgesic efficacy, …

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Systemic anticancer therapy during end of life in head and neck squamous cell carcinoma patients. A retrospective single center study.

Simone Rota, Silvia Buriolla, Andrea Franza, Stefano Cavalieri et autres

PURPOSE: Systemic anticancer treatments (SACTs) are used in advanced cancer stages to control disease and improve survival. However, their use at the end of life (Eol) can lead to side effects. This study aims to assess the clinical implications of SACTs near …

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Denosumab versus zoledronic acid in metastatic breast cancer: A retrospective observational analysis of 24-dose regimens on analgesia and skeletal-related event prevention

Giacomo Massa, Noemi Simeone, Gabriele Tinè, Paola Bracchi et autres

BACKGROUND: Based on available data in the literature, current evidence supporting the analgesic role of antiresorptive drugs is weak. This study compared the efficacy of zoledronic acid (ZA) and denosumab (Dmab) in reducing bone pain and first Skeletal Related Events (SREs) in …

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The MyPath Pain Pathway: Developing a Digital Patient-Centred Care Pathway for Cancer Pain

Morena Shkodra, Amaia Urrizola, Marie Fallon, Per Sjøgren et autres

CONTEXT: Cancer pain affects up to 45% of patients, with more than 30% experiencing moderate to severe pain. Despite established guidelines, over 40% of patients receive inadequate pain management, severely impacting their quality of life. While effective pain assessment is essential, a …

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The Italian Version of the FAMCARE-P13 Questionnaire: A Validation Study

Giacomo Massa, Tinè Gabriele, Ernesto Zecca, Rosalba Miceli et autres

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A multidisciplinary approach for patients with metastatic breast cancer: a mixed method study

Viviana Fusetti, Cinzia Brunelli, Sara Alfieri, Giuseppe Capri et autres

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Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains

Maike G. Sweegers, Christopher Bedding, Emma Nicklin, Daniela Doege et autres

INTRODUCTION: Cancer and cancer treatment have a major impact on health related quality of life (HRQoL). To improve the assessment of HRQoL in patients with cancer and evaluate the impact of policy interventions, the European Oncology Quality of Life (EUonQoL) project aims …

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