Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains
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Le résumé fourni par la source
INTRODUCTION: Cancer and cancer treatment have a major impact on health related quality of life (HRQoL). To improve the assessment of HRQoL in patients with cancer and evaluate the impact of policy interventions, the European Oncology Quality of Life (EUonQoL) project aims at developing a digital, patient centred system to assess HRQoL based on evaluations and preferences of cancer patients and survivors: the EUonQoL-kit. METHOD: Patients across the cancer care continuum, healthcare professionals and researchers from six European countries (Denmark, France, Germany, Italy, The Netherlands and United Kingdom) were asked to rate the importance of 44 pre-selected HRQoL subdomains over a maximum of three Delphi survey rounds. We evaluated the importance of HRQoL subdomains for three target populations: patients undergoing active treatment, cancer survivors and patients receiving palliative care. The results were discussed during a consensus meeting. RESULTS: 96 patients and 59 healthcare professionals participated in the Delphi study. After three rounds, consensus was reached for 20 subdomains: ability to work, communication with healthcare professionals, diarrhoea, fatigue, fear of recurrence, global health status, impact of treatment side effects, impact on children/family, insomnia, instrumental activities of daily living, maintaining independence, mobility, nausea, overall quality of life, pain, partner relationship, social activity limitations, social isolation, symptom awareness and uncertain prognosis. The subdomains pain and fear of recurrence were rated as important for all three target populations. CONCLUSION: Subdomains that were considered important for the assessment of HRQoL in patients with cancer can be summarised into: physical symptoms, mobility & activity, future outlook, social roles & activities, family & relationships, social isolation, self-efficacy, overall HRQoL, and healthcare experience. The importance of the subdomains differed for patients in different phases of the cancer care continuum. These findings were used for the creation of the first version of the EUonQoL-Kit, as a base for its further development.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains
- Date Crossref
- 19/06/2025
- Éditeur
- Springer Science and Business Media LLC
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Netherlands Cancer Institute-Antoni van Leeuwenhoek Hospital pays non établi dans la noticeStructure de recherche
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The Netherlands Cancer Institute Division of Psychosocial Research and Epidemiology pays non établi dans la noticeÉtablissement de santé
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University of Leeds Leeds Institute of Medical Research at St James's pays non établi dans la noticeUniversité ou école supérieure
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St James's University Hospital pays non établi dans la noticeÉtablissement de santé
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German Cancer Research Center pays non établi dans la noticeStructure de recherche
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Heidelberg University pays non établi dans la noticeUniversité ou école supérieure
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Fondazione IRCCS Istituto Nazionale dei Tumori pays non établi dans la noticeÉtablissement de santé
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University of Milan pays non établi dans la noticeUniversité ou école supérieure
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Laboratoire de Psychopathologie et Processus de Santé pays non établi dans la noticeStructure de recherche
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Institut Curie Psycho-Oncology Unit pays non établi dans la noticeOrganisation à but non lucratif
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Frederiksberg Hospital pays non établi dans la noticeÉtablissement de santé
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Copenhagen University Hospital Palliative Care Research Unit pays non établi dans la noticeÉtablissement de santé
Netherlands Cancer Institute-Antoni van Leeuwenhoek Hospital, Division of Psychosocial Research and Epidemiology — The Netherlands Cancer Institute et Leeds Institute of Medical Research at St James's — University of Leeds, avec 9 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.