Intimacy After Diagnosis: Navigating Sexual Health Conversations and Disparities Among Cancer Survivors

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Objective We designed a survey to determine the prevalence of sexual dysfunction among cancer patients and to understand the gaps in provider-patient communication. Methods An IRB-approved 36-item survey was distributed through the Jefferson Recruitment Enhancement Service team and social media. Questions assessed the impact of cancer treatment on sexual health, provider communication, how sexual health was assessed, and possible interventions. Chi-square test or Fisher’s exact test were used to compare the group differences with a P -value threshold (α) of 0.05 for statistical significance. Results 916 patients responded to the survey, with most being diagnosed with breast ( n = 271, 29.6%) and prostate cancer ( n = 358, 39.1%). 71.8% of patients experienced an impact on sexual function by cancer treatment. Most experienced issues with their sexual desire, body image, arousal, comfort during intercourse, and ability to achieve orgasm (α < 0.001). Only 35.5% reported being asked about their sexual health by an oncologist and only 22.2% were given a questionnaire to assess their sexual health (α < 0.001). 49.8% of breast patients and 15.4% of prostate patients were never told their sexual health could be affected by their cancer treatment (α < 0.001). 60.3% of prostate patients were formally asked about their sexual health by an oncologist compared to 21.4% of breast patients (α < 0.001). 74% of respondents stated it is essential for oncologists to speak to patients about sexual health. Conclusion Cancer survivors believe it is important for providers to discuss sexual health. However, providers are more inclined to address sexual health concerns with male patients than with female counterparts.

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