2025article

Establishing a core outcome measure for life participation in children with chronic kidney disease: a Standardized Outcomes in Nephrology—children and adolescents with chronic kidney disease (SONG-Kids) consensus workshop report

Anastasia Hughes, Andrea Matus González, Anita van Zwieten, Chandana Guha, D. Coghlan, Amanda Dominello, Javier Recabarren Silva, Jonathan C. Craig, Martin Howell, Siah Kim, Angela Rejuso, Bénédicte Sautenet, Nicole Scholes‐Robertson, Amanda Sluiter, Rebecca Wu, Germaine Wong, Mignon McCulloch, Natalia Armijo, Gabriel Alexis Gallardo Letelier, Carla Gálvez, Nicole Gonzalez-Agüero, Maria Maldonado, Viola Pinto, Luca G Torrisi, Andrea K. Viecelli, Bashir Admani, Bethany J. Foster, Alexander Hamilton, Augustina Jankauskienė, Rebecca J. Johnson, Jasmijn Kerklaan, Isaac Liu, Stephen D. Marks

2Citations signalées

35Institutions associées

14Pays d’affiliation

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Institutions

Children's Hospital at Westmead Royal Children's Hospital Flinders University Macquarie University Murdoch Children's Research Institute The University of Sydney Université de Tours Inserm methodS in Patient-centered outcomes and HEalth ResEarch Nantes Université University of Cape Town Red Cross War Memorial Children's Hospital Hospital Luis Calvo Mackenna Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán Hospital Regional de Arica Doctor Juan Noé Crevani Clínica Alemana Hospital del Niño Instituto Nacional de Pediatria Universidad Nacional Autónoma de México The University of Queensland University of Nairobi Montreal Children's Hospital McGill University Health Centre University of Exeter Royal Devon & Exeter NHS Foundation Trust Vilnius University Children's Mercy Hospital Leiden University Medical Center National University of Singapore Duke-NUS Medical School Great Ormond Street Hospital Great Ormond Street Hospital for Children NHS Foundation Trust University College London Heidelberg University University Hospital Heidelberg

Sujets associés

Childhood Cancer Survivors' Quality of LifeAdolescent and Pediatric HealthcareDialysis and Renal Disease Management

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