A Healthy Life for a Child With Medical Complexity: 10 Domains for Conceptualizing Health
Rattachement africain : us. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
BACKGROUND AND OBJECTIVES: Defining and measuring health for children with medical complexity (CMC) is poorly understood. We engaged a diverse national sample of stakeholder experts to generate and then synthesize a comprehensive list of health outcomes for CMC. METHODS: = 125) first completed Internet-based idea generation by providing unlimited short, free-text responses to the focus prompt, "A healthy life for a child or youth with medical complexity includes: ___." The resulting 707 statements were reduced to 77 unique ideas. Participants sorted the ideas into clusters based on conceptual similarity and rated items on perceived importance and measurement feasibility. Responses were analyzed and mapped via GCM software. RESULTS: The cluster map best fitting the data had 10 outcome domains: (1) basic needs, (2) inclusive education, (3) child social integration, (4) current child health-related quality of life, (5) long-term child and family self-sufficiency, (6) family social integration, (7) community system supports, (8) health care system supports, (9) a high-quality patient-centered medical home, and (10) family-centered care. Seventeen outcomes representing 8 of the 10 domains were rated as both important and feasible to measure ("go zone"). CONCLUSIONS: GCM identified a rich set of CMC outcome domains. Go-zone items provide an opportunity to test and implement measures that align with a broad view of health for CMC and potentially all children.
Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.
Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- A Healthy Life for a Child With Medical Complexity: 10 Domains for Conceptualizing Health
- Date Crossref
- 01/09/2018
- Éditeur
- American Academy of Pediatrics (AAP)
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Mattel Children's Hospital pays non établi dans la noticeÉtablissement de santé
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University of Wisconsin–Madison Department of Pediatrics pays non établi dans la noticeUniversité ou école supérieure
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Virginia Commonwealth University pays non établi dans la noticeUniversité ou école supérieure
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Children's Hospital of Richmond at VCU pays non établi dans la noticeÉtablissement de santé
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RAND Corporation pays non établi dans la noticeOrganisation à but non lucratif
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University of California pays non établi dans la noticeUniversité ou école supérieure
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Children’s Discovery and Innovation Institute pays non établi dans la noticeStructure de recherche
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David Geffen School of Medicine Department of Pediatrics pays non établi dans la noticeUniversité ou école supérieure
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Jonathan and Karin Fielding School of Public Health Department of Health Policy and Management pays non établi dans la noticeUniversité ou école supérieure
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RAND Health pays non établi dans la noticeInstitution
Mattel Children's Hospital, Department of Pediatrics — University of Wisconsin–Madison et Virginia Commonwealth University, avec 7 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.