Accès ouvert
2026
conference-paper
OpenAlex
Hege Svean Koksvik, Ingrid Rekaa Nilssen, Bente Jakobsen, Marianne Wallenius
Objectives Systemic Lupus Erythematosus (SLE) can have a substantial impact on health-related quality of life (HRQL). RAND12/SF12 is a generic tool, measuring 8 subscales of HRQL (physical function, role physical, bodily pain, global health, vitality (VT), social function (SF), role emotional (RE) …
no
(code pays fourni par la source)
Accès ouvert
2025
article
OpenAlex
Karen Schreiber, Christine Graversgaard, Ioannis Parodis, Nancy Agmon‐Levin et autres
Background: Treating rheumatic musculoskeletal diseases (RMDs) during pregnancy and breastfeeding presents significant complexities, mainly due to inconsistencies between the clinical guidance documents and the reference safety information, including the summary of product characteristics (SmPC) and the patient information leaflets (PIL). Objectives: To …
dk, gb, jp, se, il, gr, ro, pt, es, fr, nl, au, at, ch, no, de, ie, it, us, rs
(code pays fourni par la source)
Accès ouvert
2025
conference-abstract
OpenAlex
Hege Svean Koksvik, Bente Jakobsen, Ingrid Rekaa Nilssen, M. Wallenius
Background: Primary Sjögren's syndrome (pSS) is an autoimmune disorder characterized by focal lymphocytic infiltration of the exocrine glands causing dry eyes and dry mouth. Affection of internal organs like the kidneys may occur. Most affected women are diagnosed after fertile age, however …
no
(code pays fourni par la source)
Accès ouvert
2025
article
OpenAlex
Tuva Birkeland, Carina Gøtestam Skorpen, Hege Svean Koksvik, Marianne Wallenius
BACKGROUND: Limited research exists on the challenges women diagnosed with juvenile idiopathic arthritis (JIA) can face during pregnancy and breastfeeding, and if breastfeeding affects disease related factors. AIMS AND OBJECTIVES: This study aimed to explore the proportion of women with JIA breastfeeding …
no
(code pays fourni par la source)
Accès ouvert
2025
article
OpenAlex
Emma Hortemo Grøntvedt, Ingrid Mørdre, Marianne Wallenius, Hege Svean Koksvik et autres
BACKGROUND: There is sparse literature on the topic of breastfeeding in women with axial spondyloarthritis (axSpA). Our aim was to obtain more knowledge about variables affecting breastfeeding for women with axSpA. METHODS: This prospective study used data from the nationwide quality register …
no
(code pays fourni par la source)
Accès ouvert
2025
article
OpenAlex
Hege Svean Koksvik, Ingrid Rekaa Nilssen, Bente Jakobsen, Hilde Bjørngaard et autres
Objectives More knowledge about health related quality of life (HRQoL) among mothers with inflammatory joint disease (IJD) is needed to understand the complex challenges for this group of patients. The overall aim of this study was to investigate changes in HRQoL among …
no
(code pays fourni par la source)
Accès ouvert
2024
article
OpenAlex
Ingrid Rekaa Nilssen, Hege Svean Koksvik, Bente Jakobsen, Kjersti Grønning
Objective Inflammatory arthritis (IA) often come with symptoms of pain, stiffness and fatigue, as well as fluctuating and unpredictable disease patterns. All of these symptoms can cause challenges in the role as a mother for women with IA. The main objective of …
no
(code pays fourni par la source)
2024
conference-abstract
OpenAlex
Karen Ingrid Schreiber, Christine Graversgaard, Nancy Agmon‐Levin, Silvia Aguilera et autres
dk, gb, il, se, gr, ro, pt, es, fr, au, at, ch, no, de, ie, it, nl, us, rs
(code pays fourni par la source)
2024
conference-abstract
OpenAlex
Hege Svean Koksvik, Bente Jakobsen, Ingrid Rekaa Nilssen, Marianne Wallenius
no
(code pays fourni par la source)
Accès ouvert
2023
article
OpenAlex
Maylinn Bjerkaas Hanssen, Agnete Malm Gulati, Hege Svean Koksvik, Marianne Wallenius
BACKGROUND: Knowledge on breastfeeding among women with systemic lupus erythematosus (SLE) is sparse. We wanted to identify the frequency of breastfeeding in SLE, and to compare breastfeeding women with SLE to non-breastfeeding women to examine possible differences in disease characteristics and self-reported …
no
(code pays fourni par la source)
Accès ouvert
2023
conference-abstract
OpenAlex
Hege Svean Koksvik, Bente Jakobsen, Hilde Bjørngaard, T. T. Pedersen et autres
no
(code pays fourni par la source)
Accès ouvert
2023
article
OpenAlex
Chiara Tani, Dina Zucchi, Elisa Bellis, Mehret Birru Talabi et autres
OBJECTIVE: To map existing organizational care pathways in clinical centers of expertise that care for pregnant women affected by rare and complex connective tissue diseases (rcCTDs). METHODS: An international working group composed of experts in the field of pregnancy in rcCTDs co-designed …
it, ca, us, gb, br, no, es, fr, Égypte, nl, il
(code pays fourni par la source)