Cornelie D. Andela

The Dutch prolactinoma cohort studies: cross-sectional analysis of females focusing on the patient's perspective

Victoria R. van Trigt, Iris C. M. Pelsma, Ingrid Marijke Zandbergen, Leontine E. H. Bakker et autres

PURPOSE: To assess the results of patient-reported outcome measures (PROMs) in a national cohort of females with a prolactinoma by disease activity. METHODS: Females with prolactinoma included in the PRolaCT or ProlaC study were assessed cross-sectionally, comparing patients with active (prolactin above …

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Supplemental data from Van Trigt V.R. et al., The Dutch Prolactinoma Cohort Studies: Cross-sectional Analysis of Females Focusing on the Patient’s Perspective (JCEM 2026)

V.R. van Trigt, Iris C. M. Pelsma, Ingrid Marijke Zandbergen, L. E.H. Bakker et autres

Supplementary data from van Trigt V.R. et al., The Dutch Prolactinoma Cohort Studies: Cross-sectional Analysis of Females Focusing on the Patient’s Perspective (JCEM 2026)

nl (code pays fourni par la source)

Supplemental data from Van Trigt V.R. et al., The Dutch Prolactinoma Cohort Studies: Cross-sectional Analysis of Females Focusing on the Patient’s Perspective (JCEM 2026)

V.R. van Trigt, Iris C. M. Pelsma, Ingrid Marijke Zandbergen, L. E.H. Bakker et autres

Supplementary data from van Trigt V.R. et al., The Dutch Prolactinoma Cohort Studies: Cross-sectional Analysis of Females Focusing on the Patient’s Perspective (JCEM 2026)

nl (code pays fourni par la source)

Ethnicity and health-related quality of life in the post stroke population: a systematic review

Ying Xing Lee, Cornelie D. Andela, Korné Jellema, T. P. M. Vliet Vlieland et autres

BACKGROUND/OBJECTIVE: A systematic review was conducted on the association between ethnicity and health-related quality of life in post-stroke populations. METHODS: In February 2024, a comprehensive search was conducted across several databases. Studies were included when they had at least 2 distinct ethnic …

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Approach to the patient with controlled acromegaly and acromegalic arthropathy: clinical diagnosis and management

Iris C. M. Pelsma, Herman M. J. A. Kroon, Cornelie D. Andela, Enrike H. M. J. van der Linden‐van der Zwaag et autres

Following the description of an illustrative case of a 70-year-old female patient with longstanding active acromegaly and invalidating, progressive joint complaints, current insights regarding diagnosis, treatment, and long-term management of acromegalic arthropathy are summarized. Since clinical trials on this topic are lacking, …

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Evaluating the Impact of Acromegaly on Quality of Life

Eva C Coopmans, Cornelie D. Andela, Kim M. J. A. Claessen, Nienke Ruurdje Biermasz

Acromegaly has a substantial negative impact on quality of life (QoL). This review aims to discuss the impact of acromegaly on QoL from the clinical perspective as well as from the patient perspective. Furthermore, it aims to evaluate the use of patient-reported …

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Unmet needs in Cushing’s syndrome: the patients’ perspective

Elena Valassi, Iacopo Chiodini, Richard Abraham Feelders, Cornelie D. Andela et autres

Background: Cushing's syndrome (CS) is a rare condition of chronically elevated cortisol levels resulting in diverse comorbidities, many of which endure beyond successful treatment affecting the quality of life. Few data are available concerning patients' experiences of diagnosis, care and persistent comorbidities. …

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Determinants of Quality of Life in Adult Patients with Chronic Non-Bacterial Osteomyelitis (CNO) of the Sternocostoclavicular Region (SCCH): A Dutch Single Center Study

Ashna IE Ramautar, Cornelie D. Andela, Neveen A. T. Hamdy, Elizabeth Martha Winter et autres

Sternocostoclavicular hyperostosis (SCCH), the main clinical manifestation of chronic non-bacterial osteomyelitis (CNO) in adults, is associated with various degrees of chronic pain and restricted shoulder girdle function. We evaluated the impact of CNO/SCCH on quality of life (QoL) and its determinants in …

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Clinical Unmet Needs in the Treatment of Adrenal Crisis: Importance of the Patient’s Perspective

Kim M. J. A. Claessen, Cornelie D. Andela, Nienke Ruurdje Biermasz, Alberto M. Pereira

Adrenal crisis is the most severe manifestation of adrenal insufficiency (AI), but AI can present with variable signs and symptoms of gradual severity. Despite current hormone replacement strategies, adrenal crisis is still one of the leading causes of mortality in AI patients. …

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Effect of androgen deprivation therapy on cognitive functioning in men with prostate cancer: A systematic review

Cornelie D. Andela, Rafil Matte, Ingrid M. Jazet, Willemijn C.G. Zonneveld et autres

The objective of this study was to review publications assessing cognitive functioning in patients with prostate cancer treated with androgen deprivation therapy. We conducted a systematic review of the literature published in PubMed, Embase, Web of Science, Cochrane Library, and PsycINFO up …

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The perspective of patients with pituitary disease on work according to the expanded ICF model: A qualitative study

Van der Meulen Merel, Daniel J. Lobatto, R. van Furth Wouter, Sasja D. Huisman et autres

Searchable abstracts of presentations at key conferences in endocrinology ISSN 1470-3947 (print) | ISSN 1479-6848 (online)

The Perspective of Pituitary Patients on Work According to the Expanded ICF Model: a Qualitative Study

Merel van der Meulen, Daniel J. Lobatto, Wouter R. van Furth, Sasja D. Huisman et autres

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