Tanya Badal

Health‐Related Quality of Life in Adults With Congenital Heart Disease: A Population‐Based Study

Tanya Badal, William Baxter, Larissa Katherine Lloyd, Sasha Ruban et autres

Background As survival into adulthood improves for patients with congenital heart disease (CHD), quality of that survival is paramount. We assessed health‐related quality of life (HRQL) in a large adult CHD cohort. Methods We studied 868 participants from a multicenter registry with …

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Representation-first transformer semantic phenotyping reveals hidden burden heterogeneity in adult congenital heart disease

William Baxter, Calum Nicholson, Tanya Badal, Geoff Strange et autres

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Bridging communication gaps to improve adult congenital heart disease care: patient perspectives from a qualitative study

Sasha Ruban, Larissa Katherine Lloyd, Tanya Badal, Geoff Strange et autres

BACKGROUND: Adults with Congenital Heart Disease (CHD) require lifelong specialist care, yet many report communication challenges that undermine health understanding, managing their condition and their overall wellbeing. Effective specialist-patient communication is associated with better outcomes, but little research has explored adult CHD …

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Health-Related Quality of Life in Adults with Congenital Heart Disease - A Population-Based Study from the Australian National Registry

Tanya Badal, William Baxter, Larissa Katherine Lloyd, Sasha Ruban et autres

Abstract Background As survival into adulthood improves for congenital heart disease (CHD) patients, the quality of survival is paramount. We assessed health-related quality of life (HRQL) in a large Australian adult CHD cohort and identified clinical, psychosocial and system-level predictors of better …

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Understanding barriers and facilitators of transition to adult care among adolescents with Congenital Heart Disease (CHD): A qualitative study of adult perspectives

Sasha Ruban, Larissa Katherine Lloyd, Tanya Badal, Geoff Strange et autres

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A Deep Dive into the Burden of CHD—1,600-Person Study From the National CHD Registry

Tanya Badal, Caroline Nicholson, Julian G. Ayer, Michael B. Cheung et autres

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Understanding Causes of Failed Transition to Adult Care for Children With Congenital Heart Disease (CHD)

Sasha Ruban, Larissa Katherine Lloyd, Tanya Badal, David Stephen Celermajer et autres

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Living with congenital heart disease: a qualitative study to explore psychosocial impacts in adulthood

Larissa Katherine Lloyd, Sasha Ruban, Tanya Badal, Geoff Strange et autres

Background: The survival prospects of adults with congenital heart disease have improved considerably due to improved surgical interventions, resulting in a growing population. This study aims to explore the experiences of adults with congenital heart disease, to identify support needs. Methods: Participants …

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A detailed profiling study from the national Australian Congenital Heart Disease registry: rationale and design

Tanya Badal, Calum Nicholson, Julian G. Ayer, Michael Cheung et autres

Background: Previous research has outlined significant gaps in the care of children and adults with Congenital Heart Disease (CHD). The Australian Study of the Burden and Outcomes of CHD will assess medical, psychological, social and economic issues affecting CHD patients and carers …

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Predicting clinical exacerbations using respiratory oscillometry during home telemonitoring of patients taking medium-/high-dose asthma treatment

Cindy Thamrin, Jacqueline Huvanandana, Kieran Patel, Claude S. Farah et autres

Rationale Strategies for asthma management need better tools to identify risk of exacerbations. In this prospective observational study, we investigated day-to-day variability of lung mechanics, measured using home telemonitored oscillometry, by examining relationships between current symptom control and future risk of exacerbation …

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Understanding Causes of Failed Transition to Adult Care for Children with Congenital Heart Disease (Chd)

Sasha Ruban, Larissa Katherine Lloyd, Tanya Badal, Geoff Strange et autres

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Cognitive Assessment in Adult Congenital Heart Disease

Denyse A. Kersel, Calum Nicholson, Tanya Badal, S. M. Ruben et autres

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