Michael Stevenson

Caribbean Falling and the Unsayable Real

Michael Stevenson

“The Metagenomics Days”: a simplified workshop on amplicon sequencing analysis with open cloud bioinformatics for eDNA and Microbiomes

Hadj Ahmed Belaouni, Michael Stevenson, Stewart Rosell, A McClure

Abstract The “Metagenomics Days” event was organized to enhance understanding of metagenomics and microbiome analysis among participants new to the field. This paper presents an evaluation of the course’s impact through a comprehensive survey administered before and after the event. We assessed …

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Validation of a New Patient-Reported Outcome Measure of the Functional Impact of Essential Tremor on Activities of Daily Living

Ludy C. Shih, Michael Stevenson, Steven Bellows, Alfonso Fasano et autres

Background: The Essential Tremor Rating Assessment Scale (TETRAS) is a popular scale for essential tremor (ET), but its activities of daily living (ADL) and performance (P) subscales are based on a structured interview and physical exam. No patient-reported outcome (PRO) scale for …

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Biosimilars for the Treatment of Psoriasis

Duc Binh Phan, Sarah Elyoussfi, Michael Stevenson, Mark Lunt et autres

Importance: Biosimilars have the potential to reduce costs for the management of moderate-to-severe psoriasis compared with originators. However, the extrapolation of evidence enables the approval of a biosimilar for use in indications held by the originator without directly being studied in clinical …

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Study in Parkinson’s disease of exercise phase 3 (SPARX3): study protocol for a randomized controlled trial

Charity G. Patterson, Elizabeth Joslin, Alexandra B. Gil, Wendy A. Spigle et autres

BACKGROUND: To date, no medication has slowed the progression of Parkinson's disease (PD). Preclinical, epidemiological, and experimental data on humans all support many benefits of endurance exercise among persons with PD. The key question is whether there is a definitive additional benefit …

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Elements of Constitutional Discourse and the Normalization of State of Exception Governance in The Bahamas During the COVID-19 Pandemic

Michael Stevenson

Abstract This chapter generally concerns how elements of liberal democratic constitutional discourse have functioned to normalize emergency and possible state of exception governance during the COVID-19 pandemic. More specifically, the chapter focuses on the transference of legislative power to the executive under …

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How does Burden of Illness of Familial Chylomicronemia Syndrome Patients Compare to a General Population cohort? Results of a PSM study

Michael Davidson, Nandini Hadker, Sofia Martìn Suàrez, Caroline Crowson et autres

The Impact of Familial Partial Lipodystrophy on Quality of Life from the Patients’ Perspective

Elif Oral, Rob Halter, Caroline Crowson, Nandini Hadker et autres

Development of a Novel Patient-Reported Outcome Measure for Symptoms and Impacts of Familial Chylomicronemia Syndrome

David Davidson, Michael Stevenson, Montserrat Vera‐Llonch, Andrew Hsieh et autres

The burden of familial chylomicronemia syndrome in Canadian patients

Daniel Gaudet, Michael Stevenson, Nelly Komari, Grace A. Trentin et autres

BACKGROUND: Familial chylomicronemia syndrome (FCS) is a rare autosomal recessive disorder characterized by persistent extreme hypertriglyceridemia as a result of lipoprotein lipase deficiency. Canada is an important region for FCS research due to the high prevalence rates. The burden of illness and …

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Genetic Testing for Hereditary ATTR Amyloidosis: Insights from the hATTR Compass Program (4482)

Sami Khella, Naresh Bumma, Aaron Gabriel, Michael Stevenson et autres

To report real-world data from the hATTR Compass Program for patients suspected of having hereditary transthyretin (hATTR) amyloidosis.

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Profile of social self-management practices in daily life with Parkinson’s disease is associated with symptom severity and health quality of life

Linda Tickle‐Degnen, Michael Stevenson, Sarah D. Gunnery, Marie Saint‐Hilaire et autres

Purpose Social participation is a key determinant of healthy aging, yet little is known about how people with Parkinson’s disease manage social living. This study describes individual differences in social self-management practices and their association with symptom severity and health quality of …

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