Iyar Mazar

A Review of Methods Used to Assess Treatment Tolerability in Clinical Trials

Ari Gnanasakthy, Margaret Mordin, Jane Chang, Iyar Mazar et autres

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Patient experience data in formulary decision-making: Payer-reported perceptions and use

Steven Kheloussi, Iyar Mazar, Magdalena Harrington, Eleanor M. Perfetto

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Development and content validation of the Long COVID/ post-acute sequelae of COVID-19 (PASC) patient-reported outcome (PRO) instrument

Dale Chandler, Benjamin Abramoff, Candace Bramson, Joseph C. Cappelleri et autres

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Initial Psychometric Evaluation of the Barth Syndrome Symptom Assessment (BTHS-SA) for Adolescents and Adults in a Phase 2 Clinical Study

Chad Gwaltney, Alan L. Shields, Emily Love, Sarah Ollis et autres

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Exploring Factors That Influence the Measurement of Patient-Reported Impacts of Alopecia Areata

Arash Mostaghimi, Gregory B. Dwyer, Yemi Oluboyede, Iyar Mazar et autres

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POS1294 GAPS IN VALIDATION OF CLINICAL OUTCOME ASSESSMENT MEASURES IN IDIOPATHIC INFLAMMATORY MYOPATHIES

Steven Knight, Sherry A. McKee, Jerry A. Miller, H. Makin et autres

A summary of neurological and neurocognitive manifestations for Gaucher disease type 3 from infancy to adulthood

Camille Rochmann, James Turnbull, Robert Krupnick, Stella Karantzoulis et autres

Psychometric performance of the Primary Mitochondrial Myopathy Symptom Assessment (PMMSA) in a randomized, double-blind, placebo-controlled crossover study in subjects with mitochondrial disease

Chad Gwaltney, Jonathan Stokes, Anthony Aiudi, Iyar Mazar et autres

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Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF©

Fiona Taylor, Cem Akin, Roger E. Lamoureux, Brad Padilla et autres

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Development and content validity of the Barth Syndrome Symptom Assessment (BTHS-SA) for adolescents and adults

Chad Gwaltney, Jonathan Stokes, Anthony Aiudi, Iyar Mazar et autres

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“I Want That Life a Lot…How on Earth Do I Get That?” Examining Challenges for Men With Barth Syndrome in Their Transitions to Adulthood

Iyar Mazar, Sara M. Moorman

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Development of a Patient-Reported Outcome Questionnaire to Evaluate Primary Mitochondrial Myopathy Symptoms: The Primary Mitochondrial Myopathy Symptom Assessment

Chad Gwaltney, Jonathan Stokes, Anthony Aiudi, Iyar Mazar et autres

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