Angret de Boer

Value-sensitive design generation with stakeholders for perinatal life support development

Juliette van Haren, Angret de Boer, Jan Heyer

Artificial Placenta and Artificial Womb (APAW) technologies are being developed to improve outcomes for extremely premature infants. Before such technology can be advanced to human trials, disparate challenges need to be addressed, spanning from technological issues that are addressed through functional prototypes …

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Understanding posterior drooling in children and young people with neurodevelopmental disabilities: a parental perspective

Lynn B. Orriëns, J.J.W. van der Burg, Petra Maille-Wisse, Angret de Boer et autres

BACKGROUND: Saliva control problems in children and young people with neurodevelopmental disabilities are classified as anterior drooling (i.e. loss of saliva from the mouth) and posterior drooling (i.e. saliva spillage into the oropharynx). Posterior drooling poses serious health risks, but is often …

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Stakeholder Perspectives on the Design of First‐In‐Human Trials for Artificial Amnion and Placenta Technology: A Qualitative Study

Angret de Boer, André Krom, Rania Kalaai, Marieke de Vries et autres

OBJECTIVE: Artificial Amnion and Placenta Technology (AAPT), designed to improve outcomes in extreme prematurity, has shown promise in animal studies, with human trials anticipated soon. This study seeks to inform the responsible design of future trials by utilising insights from parents who …

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Human artificial placenta technology-trials: counselling and informed consent using healthcare professionals’ and parental perspectives

Angret de Boer, André Krom, Rania Kalaai, Marieke de Vries et autres

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Value-sensitive design generation with stakeholders for perinatal life support development

Juliette van Haren, Angret de Boer, Jan Heyer

Navigating the Ethical Landscape of the Artificial Placenta: A Systematic Review

Alice Cavolo, Angret de Boer, Lien De Proost, E. J. T. Verweij et autres

This systematic review aims at presenting the ethical debate on the artificial placenta (AP) by identifying, distinguishing, and organizing the different ethical arguments described in the literature. Articles were selected based on predefined inclusion criteria: discussing ethical arguments, on AP, written in …

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Voices of experience: insights from Dutch parents on periviability guidelines and personalisation

Lien De Proost, Angret de Boer, Eduard Verhagen, Marije Hogeveen et autres

OBJECTIVE: To investigate the perspectives of experienced parents regarding guidelines and personalisation for managing imminent extremely premature births (22-26 weeks gestational age (GA)) . The study examined four scenarios: no guideline, a guideline based on GA, a guideline based on GA plus …

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Voices of experience: what Dutch parents teach us about values and intuition in periviable decisions

Angret de Boer, Lien De Proost, Marieke de Vries, Marije Hogeveen et autres

OBJECTIVE: When extremely premature birth at the limits of viability is imminent, shared decision-making with parents regarding the infant's treatment is widely recommended. Aligning decisions with parental values can be challenging. So, this study aims to get insight into (1) what values …

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Navigating the Ethical Landscape of the Artificial Placenta: A Systematic Review

Alice Cavolo, Angret de Boer, Lien De Proost, E. J. T. Verweij et autres

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Opportunities and Challenges of Prognostic Models for Extremely Preterm Infants

Angret de Boer, Pauline E. van Beek, Peter Andriessen, Floris Groenendaal et autres

Predicting the short- and long-term outcomes of extremely preterm infants remains a challenge. Multivariable prognostic models might be valuable tools for clinicians, parents, and policymakers for providing accurate outcome estimates. In this perspective, we discuss the opportunities and challenges of using prognostic …

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Perspectives of extremely prematurely born adults on what to consider in prenatal decision-making: a qualitative focus group study

Angret de Boer, Lien De Proost, Marieke de Vries, Marije Hogeveen et autres

OBJECTIVE: A shared decision-making (SDM) approach is recommended for prenatal decisions at the limit of viability, with a guiding role for parental values. People born extremely premature experience the consequences of the decision made, but information about their perspectives on prenatal decisions …

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Navigating the Ethical Landscape of the Artificial Placenta: A Systematic Review

Alice Cavolo, Angret de Boer, Lien De Proost, E. J. T. Verweij et autres

be, nl (code pays fourni par la source)