Mary Ellen Csuka

Daniel J McCarty, MD: A Giant of Rheumatology

Ann K. Rosenthal, Mary Ellen Csuka, Paul B. Halverson

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Prognostic significance of pericardial effusion in systemic sclerosis-associated pulmonary hypertension: analysis from the PHAROS Registry

Yiming Luo, Jessica Gordon, Jiehui Cici Xu, Kathleen D. Kolstad et autres

OBJECTIVES: Pulmonary hypertension (PH) is a leading cause of death in patients with SSc. The purpose of this study was to determine the prognostic significance of pericardial effusion in patients with SSc-PH. METHODS: Pulmonary Hypertension Assessment and Recognition of Outcomes in Scleroderma …

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Effects of nintedanib in patients with limited cutaneous systemic sclerosis and interstitial lung disease

Yannick Allanore, Dinesh Khanna, Vanessa M. Smith, Martin Aringer et autres

OBJECTIVES: To investigate the course of interstitial lung disease (ILD) and the effects of nintedanib in patients with limited cutaneous systemic sclerosis (lcSSc). METHODS: In the SENSCIS trial, patients with SSc-ILD were randomized to receive nintedanib or placebo. Patients who completed the …

fr, us, be, de, no, jp, cn, il, gb (code pays fourni par la source)

Lymphocyte subset abnormalities in early severe scleroderma favor a Th2 phenotype and are not altered by prior immunosuppressive therapy

Ankoor R. Shah, Jan Storek, Rob Woolson, Ashley Pinckney et autres

OBJECTIVES: The Scleroderma: Cyclophosphamide or Transplantation (SCOT) trial compared hematopoietic stem cell transplant to CYC treatment in patients with early SSc with progressive skin and lung or kidney involvement. Here we describe lymphocyte phenotype abnormalities at study entry and the relation to …

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Clinical and Molecular Findings After Autologous Stem Cell Transplantation or Cyclophosphamide for Scleroderma: Handling Missing Longitudinal Data

Lynette Keyes‐Elstein, Ashley Pinckney, Ellen A. Goldmuntz, Beverly Welch et autres

OBJECTIVE: Among individuals with systemic sclerosis (SSc) randomized to cyclophosphamide (CYC) (n = 34) or hematopoietic stem cell transplantation (HSCT) (n = 33), we examined longitudinal trends of clinical, pulmonary function, and quality of life measures while accounting for the influence of …

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Agreement Between Physician Evaluation and the Composite Response Index in Diffuse Cutaneous Systemic Sclerosis

Boyang Zheng, Mianbo Wang, Kerry McKenna, Lee S. Shapiro et autres

OBJECTIVE: Diffuse cutaneous systemic sclerosis (SSc) is a highly heterogeneous disease. A provisionally approved Composite Response Index in diffuse cutaneous SSc (CRISS) was developed as a 1-year outcome measure for clinical trials. Our goal was to further validate the CRISS by examining …

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Reporting items for capillaroscopy in clinical research on musculoskeletal diseases: a systematic review and international Delphi consensus

Francesca Ingegnoli, Ariane L. Herrick, Tommaso Schioppo, Francesca Bartoli et autres

OBJECTIVES: The level of detail included when describing nailfold videocapillaroscopy (NVC) methods varies among research studies, making interpretation and comparison of results challenging. The overarching objective of the present study was to seek consensus on the reporting standards in NVC methodology for …

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Determinants of low bone mineral density in people with multiple sclerosis: Role of physical activity

Brice Thomas Cleland, Paula E. Papanek, Benjamin A. Ingraham, April L. Harkins et autres

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Efficacy of Osteoporosis Prevention Smartphone App

Polly A. Ryan, Roger Brown, Mary Ellen Csuka, Paula E. Papanek

BACKGROUND: The Striving to be Strong study tested the efficacy of a multifaceted, theory-based, complex osteoporosis prevention smartphone application (app). We hypothesized use of the app would improve bone mineral density and trabecular bone scores. METHODS: The study was a three-group, prospective, …

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Risk Factors for Mortality and Cardiopulmonary Hospitalization in Systemic Sclerosis Patients At Risk for Pulmonary Hypertension, in the PHAROS Registry

Vivien M Hsu, Laura Kathleen Hummers, Ami A. Shah, Robert W. Simms et autres

OBJECTIVE: We sought to identify predictors of mortality and cardiopulmonary hospitalizations in patients at risk for pulmonary hypertension (PH) and enrolled in PHAROS, a prospective cohort study to investigate the natural history of PH in systemic sclerosis (SSc). METHODS: The at-risk population …

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Background and method of the Striving to be Strong study a RCT testing the efficacy of a m-health self-management intervention

Polly A. Ryan, Paula E. Papanek, Mary Ellen Csuka, Melissa E. Brown et autres

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Long-Term Outcomes in Systemic Sclerosis-Associated Pulmonary Arterial Hypertension From the Pulmonary Hypertension Assessment and Recognition of Outcomes in Scleroderma Registry (PHAROS)

Kathleen D. Kolstad, Shufeng Li, Virginia Steen, Marcy B. Bolster et autres

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