Accès ouvert
2025
article
OpenAlex
Lenka Groeneveld, Caroline Barbara Terwee, Esmee M. van der Willik, Frans J. van Ittersum et autres
OBJECTIVES: This study aimed to assess construct validity against commonly used patient-reported outcome measures (PROMs), test-retest reliability and responsiveness of seven Dutch-Flemish Patient-Reported Outcomes Measurement Information System (PROMIS) computerised adaptive testing (CATs) in Dutch adults with type 2 diabetes (T2D), and assess …
nl
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Accès ouvert
2024
article
OpenAlex
Attie Tuinenburg, Domino Determann, Elise H. Quik, Esmee M. van der Willik et autres
INTRODUCTION: Patient-reported outcomes measures (PROMs) are increasingly prevalent in healthcare and used for shared decision-making and healthcare quality evaluation. However, the extent to which patients with varying health literacy levels can complete PROMs is often overlooked. This may lead to biased aggregated …
nl, be
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Accès ouvert
2023
article
OpenAlex
Caroline Barbara Terwee, Esmee M. van der Willik, Fenna van Breda, Brigit C. van Jaarsveld et autres
BACKGROUND: The Patient-Reported Outcomes Measurement Information System (PROMIS®) has the potential to harmonize the measurement of health-related quality of life (HRQL) across medical conditions. We evaluated responsiveness and minimal important change (MIC) of seven Dutch-Flemish PROMIS computerized adaptive tests (CAT) in Dutch …
nl
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Accès ouvert
2022
article
OpenAlex
Robin Lengton, Esmee M. van der Willik, Esther N. M. de Rooij, Yvette Meuleman et autres
BACKGROUND: Chronic kidney disease-associated pruritus (CKD-aP) is common in dialysis patients, and is associated with lower quality of life and increased risk of death. We investigated the association between residual estimated glomerular filtration rate (eGFR), dialysis adequacy or serum phosphate level and …
nl, us
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Accès ouvert
2022
article
OpenAlex
Esmee M. van der Willik, Jet Milders, Johannes A J Bart, Willem Jan W. Bos et autres
OBJECTIVES: Patient-reported outcome measures (PROMs) provide insight into patients' experienced health and needs, and can improve patient-professional communication. However, little is known about how to discuss PROM results. This study aimed to provide in-depth knowledge of patients' and healthcare professionals' experiences with …
nl
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Accès ouvert
2022
article
OpenAlex
Esmee M. van der Willik, Fenna van Breda, Brigit C. van Jaarsveld, Marlon van de Putte et autres
BACKGROUND: The Patient-Reported Outcomes Measurement Information System (PROMIS®) has been recommended for computerized adaptive testing (CAT) of health-related quality of life. This study compared the content, validity, and reliability of seven PROMIS CATs to the 12-item Short-Form Health Survey (SF-12) in patients …
nl
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Accès ouvert
2022
article
OpenAlex
Esmee M. van der Willik, Robin Lengton, Marc H. Hemmelder, Ellen Karen Hoogeveen et autres
BACKGROUND: Itching (pruritus) is common in dialysis patients, but little is known about its impact on health-related quality of life (HRQOL), sleep problems and psychological symptoms. This study investigates the impact of itching in dialysis patients by looking into the persistence of …
nl
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Accès ouvert
2021
review
OpenAlex
Ype de Jong, Esmee M. van der Willik, Jet Milders, Yvette Meuleman et autres
RATIONALE & OBJECTIVE: Explore priorities related to outcomes and barriers of adults with chronic kidney disease (CKD) regarding person centred care and care planning. STUDY DESIGN: Systematic review of qualitative studies. SEARCH STRATEGY & SOURCES: In July 2018 six bibliographic databases, and …
nl, au
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Accès ouvert
2021
article
OpenAlex
Ype de Jong, Esmee M. van der Willik, Jet Milders, Carlijn G. N. Voorend et autres
BACKGROUND: Reviews of qualitative studies allow for deeper understanding of concepts and findings beyond the single qualitative studies. Concerns on study reporting quality led to the publication of the COREQ-guidelines for qualitative studies in 2007, followed by the ENTREQ-guidelines for qualitative reviews …
nl, au
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Accès ouvert
2021
article
OpenAlex
Niki Lijftogt, Anco C. Vahl, Eleonora G. Karthaus, Esmee M. van der Willik et autres
BACKGROUND: Increased use of endovascular aneurysm repair (EVAR) and reduced open surgical repair (OSR), has decreased postoperative mortality after elective repair of abdominal aortic aneurysms (AAAs). The choice between EVAR or OSR depends on aneurysm anatomy, and the experience and preference of …
nl
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Accès ouvert
2020
article
OpenAlex
Esmee M. van der Willik, Caroline Barbara Terwee, Willem Jan W. Bos, Marc H. Hemmelder et autres
Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this …
nl, it
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Accès ouvert
2020
article
OpenAlex
Esmee M. van der Willik, Erik W. van Zwet, Tiny Hoekstra, Frans J. van Ittersum et autres
A funnel plot is a graphical method to evaluate health-care quality by comparing hospital performances on certain outcomes. So far, in nephrology, this method has been applied to clinical outcomes like mortality and complications. However, patient-reported outcomes (PROs; eg, health-related quality of …
nl, it
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