Giovanna Devercelli

Characteristics and outcomes of hospitalised adults with COVID-19 in a Global Health Research Network: A cohort study

Brian D. Bradbury, Qing Xia, Giovanna Devercelli, Juan Zhang et autres

Objective To examine age, gender, and temporal differences in baseline characteristics and clinical outcomes of adult patients hospitalised with COVID-19. Design A cohort study using deidentified electronic medical records from a Global Research Network. Setting/Participants 67 456 adult patients hospitalised with COVID-19 …

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Trends in characteristics and outcomes among US adults hospitalised with COVID-19 throughout 2020: An observational cohort study

Hillary A. Keenan, Charles Brown, Carolyn M. Bennett, Qing Xia et autres

Objectives To examine the temporal patterns of patient characteristics, treatments used and outcomes associated with COVID-19 in patients who were hospitalised for the disease between January and 15 November 2020. Design Observational cohort study. Setting COVID-19 subset of the Optum deidentified electronic …

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Clinical Validation of a Primary Antibody Deficiency Screening Algorithm for Primary Care

Marianne A. Messelink, Paco M J Welsing, Giovanna Devercelli, J. Marsden et autres

PURPOSE: The diagnostic delay of primary antibody deficiencies (PADs) is associated with increased morbidity, mortality, and healthcare costs. Therefore, a screening algorithm was previously developed for the early detection of patients at risk of PAD in primary care. We aimed to clinically …

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Correction to: Content validation and psychometric evaluation of the Angioedema Quality of Life Questionnaire for hereditary angioedema

Magdalena Vanya, Maureen Watt, Saeid Shahraz, Charlotte E. Kosmas et autres

Correction to: J Patient Rep Outcomes7, 33 (2023). Following publication of the original article [1], the authors identified an error in the author name of Joan Mendivil. The incorrect author’s name is: Joan Menauthoril. The correct author’s name is: Joan Mendivil. The …

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Estimation of Health State Utility Values in Fabry Disease Using Vignette Development and Valuation

Derralynn Hughes, Andrew Lenny, Koonal Shah, Louise Longworth et autres

Background: Health state utilities are measures of health-related quality of life that reflect the value placed on improvements in patients’ health status and are necessary for estimation of quality-adjusted life-years. Health state utility data on Fabry disease (FD) are limited. In this …

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Estimation of Health State Utility Values in Fabry Disease Using Vignette Development and Valuation

Derralynn Hughes, Andrew Lenny, Koonal Shah, Louise Longworth et autres

Background Health state utilities are measures of health-related quality of life that reflect the value placed on improvements in patients’ health status and are necessary for estimation of quality-adjusted life-years. Health state utility data on Fabry disease (FD) are limited. In this …

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Long-term lanadelumab treatment improves health-related quality of life in patients with hereditary angioedema

William R. Lumry, Marcus Maurer, Karsten Weller, Marc A. Riedl et autres

BACKGROUND: Hereditary angioedema (HAE) is associated with a substantial disease burden. Lanadelumab reduced the HAE attack rate during 132 weeks of follow-up in the HELP open-label extension (OLE) Study (NCT02741596). OBJECTIVE: To measure the impact of long-term lanadelumab treatment on patient-reported outcomes …

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Content validation and psychometric evaluation of the Angioedema Quality of Life Questionnaire for hereditary angioedema

Magdalena Vanya, Maureen Watt, Saeid Shahraz, Charlotte E. Kosmas et autres

BACKGROUND: There is considerable burden of illness in hereditary angioedema (HAE). However, instruments to assess health-related quality of life (HRQoL) in HAE are limited. The Angioedema Quality of Life Questionnaire (AE-QoL) was developed to measure HRQoL in patients with recurrent angioedema; the …

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Health-Related Quality of Life (HRQoL) in Pediatric Patients with Hereditary Angioedema (HAE) Receiving Lanadelumab: Exploratory Results From the SPRING Study

Maureen Watt, Marcus Maurer, William R. Lumry, H. Henry Li et autres

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Early Diagnosis of Primary Immunodeficiency Disease Using Clinical Data and Machine Learning

Anoop Mayampurath, Aswathy Ajith, Colin Anderson‐Smits, Shun‐Chiao Chang et autres

BACKGROUND: Primary immunodeficiency diseases (PIDD) are a group of immune-related disorders that have a current median delay of diagnosis between 6 and 9 years. Early diagnosis and treatment of PIDD has been associated with improved patient outcomes. OBJECTIVE: To develop a machine …

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Estimation of health state utility values in Fabry disease using vignette construction and valuation

Derralynn Hughes, Andrew Lenny, Koonal Shah, Louise Longworth et autres

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Trends in characteristics and outcomes among US adults hospitalised with COVID-19 throughout 2020: an observational cohort study

John H. Page, Ajit Londhe, Corinne Brooks, Jie Zhang et autres

OBJECTIVES: To examine the temporal patterns of patient characteristics, treatments used and outcomes associated with COVID-19 in patients who were hospitalised for the disease between January and 15 November 2020. DESIGN: Observational cohort study. SETTING: COVID-19 subset of the Optum deidentified electronic …

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