Tasha Wainstein

Current Practices for Evaluating Clinical Supervisors in North American Genetic Counseling Programs

Sydney Schulz, Tasha Wainstein, Susan Randall Armel, Jenna Scott et autres

Clinical supervision is a cornerstone of genetic counseling education, yet there are no standardized methods for evaluating supervisors across North American programs. The Accreditation Council for Genetic Counseling requires that supervisors be evaluated regularly but provides minimal guidance on implementation. This study …

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Introduction to the Special Issue on Research Methods in Genetic Counseling: Diverse Methods, Shared Purpose

Melanie F. Myers, Hetanshi Naik, Tasha Wainstein

Plain Language Summary Resources that explain how to design studies, carry them out, analyze data, and share findings are important for supporting evidence‐based practice and training for genetic counselors and trainees. The articles in this Special Issue on Research Methods present a …

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Qualitative research reporting in genetic counseling: A state‐of‐the‐art assessment and recommendations for enhancing methodological congruence and quality

Tasha Wainstein

Qualitative research plays a growing role in advancing genetic counseling scholarship through deep insights into experiences, contexts, and systems that shape health outcomes. These perspectives can inform effective and equitable patient-centered care. However, qualitative research's potential to inform practice and policy remains …

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Correction: Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services

Tasha Wainstein, Cyrus G. Boelman, Connie Ens, William T. Gibson et autres

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Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services

Tasha Wainstein, Cyrus G. Boelman, Connie Ens, William T. Gibson et autres

BACKGROUND: Genetic counselling for adolescents necessitates an approach distinct from that used with adults. Developing best practices is crucial, considering the growing number of disabled adolescents worldwide and increasing use of genomic testing early in life. We investigated perceptions of adolescents (10-19 …

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P563: Adolescents’ experiences and perspectives of genetic testing and its personal utility

Daniel Assamad, Stephanie Luca, Elise Poole, Lucie Dupuis et autres

As genetic testing becomes more widely used in adolescent medicine, the number of teenagers with identified genetic diagnoses continues to increase. These technologies may be particularly useful in children and adolescents since early diagnosis, risk identification and tailored intervention can result in …

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Non-Genetic Healthcare Providers’ Experiences and Perspectives with Rapid Genome-Wide Sequencing in Canadian Neonatal Intensive Care Units

Lauren Piers, Tasha Wainstein, Gustavo Pelligra, Horacio C. Osiovich et autres

BACKGROUND/OBJECTIVES: Rapid genome-wide sequencing (rGWS) continues to transform the care provided to infants with genetic conditions in neonatal intensive care units (NICUs). Previous research has demonstrated that rGWS has immense benefits on patient care; however, little is known about non-genetic healthcare providers' …

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Adolescents' implicit and explicit attitudes toward their peers with genetic conditions

Tasha Wainstein, David T. Yeung, Lauren Jennings

INTRODUCTION: Previous research has demonstrated that children lacking knowledge about genetic disorders may have harmful attitudes toward people with disabilities, but disability awareness can successfully modify these attitudes. We explored adolescents' implicit and explicit attitudes toward peers with genetic conditions to determine …

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Exploring genetic counselors' experiences with non‐paternity in clinical settings

Emma Cunningham, Stephen Robert Hays, Tasha Wainstein, Heather A. Zierhut et autres

Non-paternity (NP) is a challenging dilemma faced by genetics providers and there is little consensus on whether this finding should be disclosed. Discussions in the literature are highly theoretical, with limited research regarding how disclosure decisions are enacted in practice. We explored …

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P823: Insights and strategies for inclusive adolescent and young adult participation in genetics research

Tasha Wainstein, Courtney B. Cook, Daniel Assamad, Julia A. Heaton et autres

Adolescents and young adults (AYA) constitute a rapidly growing population group whose health concerns are gaining recognition throughout health care. There is growing appreciation of the need to involve AYA in all matters affecting their lives, including their participation in research. Yet, …

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P531: Developing the patient-reported Genetic testing Utility InDEx (P-GUIDE): Assessing value of genetic testing from patients’ perspectives in multiple clinical contexts

Elise Poole, Stephanie Luca, Daniel Assamad, Bowen Xiao et autres

The use of genetic testing as part of routine clinical care is growing. When determining the value of genetic testing to inform clinical practice and policy, it is critical to include personal utility, or how individuals value genetic testing, to ensure the …

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Promoting methodological integrity in qualitative genetic counseling research: Insights arising from the commentary by Lynch, Gillam, and Vears

Tasha Wainstein, Alison M. Elliott, Jehannine Austin

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