Living with and beyond advanced cancer: understanding patient needs and experiences

Résumé fourni par la source

Advances in precision oncology and cancer therapies have improved survival for Canadians with advanced cancer, resulting in a growing population living long-term while receiving ongoing treatment. However, little is known about their supportive care needs or how they differ from those treated with curative intent, limiting the relevance of existing resources. As such, this study aimed to explore the lived experiences and challenges faced by Canadians receiving ongoing treatment for advanced cancer. A qualitative study was conducted involving semi-structured virtual interviews with 22 Canadians receiving ongoing treatment for advanced cancer. Interviews were audio-recorded, transcribed verbatim, and analysed thematically using descriptive techniques. Two overarching themes were identified. First, participants described challenges unique to living long-term with advanced cancer, including persistent treatment-related symptoms, uncertainty about the future, and disruptions to daily routines, responsibilities, and identity. Second, participants described barriers and facilitators influencing their ability to live well with advanced cancer, including capacity for self-management and self-advocacy, support from family and friends, financial considerations, and support from healthcare providers. Participants reported difficulty navigating available resources and limited guidance from providers and felt that existing supports and resources were insufficient to address the challenges they experienced. Individuals living with advanced cancer face physical, emotional, practical, and adjustment-related challenges that are distinct from those with earlier stage cancers. Existing supports are rarely effective at addressing these challenges, leaving patients to grapple with unmet needs. Future research should include the development and adaptation of supports that are accessible and tailored to this population.