Through the Lens of Those Who Care: Insights from Informal Caregivers of Lung Transplant Recipients

Résumé fourni par la source

Lung transplantation is a life‑saving intervention for individuals with end‑stage lung disease, yet the post‑transplant course is often complicated by rejection, infection, and comorbidities. Informal caregivers play a central role in supporting recipients throughout this demanding recovery process, yet their experiences remain underexplored. While caregiving is associated with significant burden and psychological distress, it may also yield positive outcomes such as personal growth, strengthened relationships, and enhanced meaning. This cross-border study examines and compares outcomes among informal caregivers of lung transplant recipients in Ontario, Canada, and Michigan, United States. In this cross-sectional, cross-border study, informal caregivers of lung transplant recipients are invited to complete an online Qualtrics survey. Caregiver burden is assessed using the Zarit Burden Interview, which measures perceived strain associated with the caregiving role. Symptoms of anxiety and depression are evaluated using the Hospital Anxiety and Depression Scale. Positive aspects of caregiving are measured with the Positive Aspects of Caregiving Scale, which captures perceived benefits, meaning, and rewarding experiences related to caregiving. The study is currently underway. Findings will identify key challenges and strengths among informal caregivers of lung transplant recipients and are expected to inform improvements in access to existing caregiver supports and guide the development of targeted, evidence‑based resources across both regions.

Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.