Collaborative knowledge mobilisation to increase awareness and use of new SNOMED clinical terms for fetal alcohol spectrum disorder in England
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Le résumé fourni par la source
Introduction: Fetal alcohol spectrum disorder (FASD) affects an estimated 1.8-3.6% of UK school children and up to 27% of children in care. FASD remains vastly under-diagnosed and under-recorded in UK electronic patient records (EPRs), leading to significant challenges for individuals with the condition. In 2024, we developed new SNOMED clinical terms aligned to UK national guidelines and quality standards for FASD. Aims: Through collaborative knowledge mobilisation (KM), we aimed to: i) raise awareness of the importance of utilising these new clinical terms; ii) identify barriers to FASD code usage in primary care EPRs; iii) co-develop creative communication materials and dissemination strategies. Methods: = 18) including paediatricians, general practitioners, wider health professionals, data specialists, third-sector representatives, and researchers, through a workshop and individual meetings. Individuals living with FASD provided their perspectives on the importance of recognising FASD in EPRs, for inclusion in communication materials. Results: We co-produced free, publicly available creative communication materials including an animation, infographics and social media images. Materials focus on raising awareness of new SNOMED clinical terms for FASD, address stakeholder reported barriers to clinical coding, and provide actionable recommendations to improve clinical coding for FASD within primary care electronic records, and diagnostic services. We promoted these materials through social media platforms, a press release, conference presentations, and an editorial. Discussion: Our collaborative KM work provides an exemplar for developing materials with the aim of supporting improved clinical coding in EPRs. Further work is required to maximise and evaluate the impact of our materials.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Collaborative knowledge mobilisation to increase awareness and use of new SNOMED clinical terms for fetal alcohol spectrum disorder in England
- Date Crossref
- 31/08/2026
- Éditeur
- Frontiers Media SA
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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National Institute for Health and Care Excellence pays non établi dans la noticeOrganisme public
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University of Bristol Bristol Medical School pays non établi dans la noticeUniversité ou école supérieure
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NIHR Bristol Biomedical Research Centre pays non établi dans la noticeStructure de recherche
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Bristol Clinical Commissioning Group pays non établi dans la noticeInstitution
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NHS Bristol pays non établi dans la noticeÉtablissement de santé
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University of Surrey pays non établi dans la noticeUniversité ou école supérieure
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Surrey and Borders Partnership NHS Foundation Trust pays non établi dans la noticeÉtablissement de santé
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National Institute for Health and Care Research (NIHR) School for Public Health Research (SPHR) pays non établi dans la noticeStructure de recherche
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South Yorkshire Integrated Care Board (ICB) pays non établi dans la noticeInstitution
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National Organisation for FASD pays non établi dans la noticeInstitution
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Sponsored by Royal College of Physicians of Edinburgh Paediatric Representative Scottish Health Action on Alcohol Problems pays non établi dans la noticeUniversité ou école supérieure
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Past Chair and Continuing Member Scottish Association of Community Child Health Past President and Continuing Member of Scottish Paediatric Society pays non établi dans la noticeOrganisation à but non lucratif
National Institute for Health and Care Excellence, Bristol Medical School — University of Bristol et NIHR Bristol Biomedical Research Centre, avec 9 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.