REVISITING HUMAN RIGHTS AND PEOPLE LIVING WITH ALBINISM

Résumé fourni par la source

People with albinism face multiple forms of discrimination worldwide. Albinism is still profoundly misunderstood, socially and medically. The physical appearance of persons with albinism is often the object of erroneous beliefs and myths influenced by superstition, which foster their marginalization and social exclusion. This leads to various forms of stigma and discrimination. People living with albinism in South Africa continue to experience various forms of social exclusion and discrimination despite the county’s progressive constitutional and human rights framework. Albinism is a genetic condition characterised by a lack of melanin in the skin, hair and eyes, often accompanied by visual impairment and extreme sensitivity to sunlight. Beyond the medical challenges associated with this condition, individuals with albinism frequently face stigma, marginalised and harmful stereotypes within society. Such exclusion often results in violation of the fundamental human rights. An inclusivity theory is used to ascertain interdisciplinary frameworks that examine how individuals, groups, and systems integrate diverse perspectives, identities, and experiences while minimizing exclusionary practices in the society. Most of the studies conducted examined the phenotypic and genotypic characteristics of albinism and explored the challenges faced by clinicians in diagnosing albinism and issues related to genetic testing, interpretation and subsequent counselling of affected patients and their families. Ongoing research in the field of albinism is relevant to have a clearer understanding of the psycho-social effect of Albinism. Hence the importance of this study. The desktop methodology is used in this research endeavour to examine various studies regarding the phenomenon of albinism. The study is conducted through a doctrinal and comparative research method examining the legal framework of social exclusion and human rights violation against people living with albinism. The article argues that though legislative protection exists, persistent social attitudes and inadequate implementation of policies continue to undermine the effective protection of persons with albinism.

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