Development of the UK Severe Asthma Registry as a performance-monitoring quality improvement platform
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Le résumé fourni par la source
The UK Severe Asthma Registry (UKSAR) was established to facilitate research and quality improvement including performance monitoring across UK severe asthma centres. We here describe its development and refinement for the latter of those objectives. The selection of performance outcome measures for severe asthma clinical outcomes from clinician and patient perspectives, data collection and assessment of clinical variation across severe asthma centres is described. We report on the aim of UKSAR to assess for unwarranted clinical variation in those clinical outcomes between severe asthma centres and discuss the utility of UKSAR and associated registry meetings in addressing clinical variation and providing optimal severe asthma care. After stakeholder consultation, outcomes measures relating to exacerbations, oral corticosteroid exposure, asthma control and quality of life were selected with appropriate case-mix adjustment to help identify unexplained clinical variation. The registry data fields were then modified to collect the required data. Twice-yearly meetings of the registry steering committee were held to discuss data quality. Over 2018-2025 the number of participating centres increased from 17 to 42. To date, baseline data have been entered for 18 473 patients, with data meeting the agreed quality threshold for 12 792 patients. Analysis of variation in outcomes between centres, after case-mix adjustment and allowing for effect of centre size, shows relatively few examples of significant variation in outcomes between centres. Best-practice case studies from high-performing centres are presented. Twice-yearly discussion at registry meetings, attended by representatives from each severe asthma centre, of outcome measures and related research, together with sharing of best practice may explain the relatively low variation in clinical outcomes between centres. However, a limitation of UKSAR is that it cannot evaluate the presence and clinical impact of 'hidden' severe asthma not known to specialist services.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Development of the UK Severe Asthma Registry as a performance-monitoring quality improvement platform
- Date Crossref
- 01/07/2026
- Éditeur
- BMJ
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Queen Mary University of London Blizard Institute pays non établi dans la noticeUniversité ou école supérieure
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Barts Health NHS Trust pays non établi dans la noticeÉtablissement de santé
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Blizard Institute pays non établi dans la noticeUniversité ou école supérieure
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Portsmouth Hospitals NHS Trust pays non établi dans la noticeÉtablissement de santé
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Queen's University Belfast Wellcome-Wolfson Institute for Experimental Medicine pays non établi dans la noticeUniversité ou école supérieure
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University Hospitals Plymouth NHS Trust pays non établi dans la noticeÉtablissement de santé
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Nottingham University Hospitals NHS Trust pays non établi dans la noticeÉtablissement de santé
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Harefield Hospital pays non établi dans la noticeÉtablissement de santé
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University Hospitals of North Midlands NHS Trust pays non établi dans la noticeÉtablissement de santé
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Taunton & Somerset NHS Foundation Trust pays non établi dans la noticeOrganisation à but non lucratif
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Somerset NHS Foundation Trust pays non établi dans la noticeÉtablissement de santé
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Lancashire Teaching Hospitals NHS Foundation Trust pays non établi dans la noticeÉtablissement de santé
Blizard Institute — Queen Mary University of London, Barts Health NHS Trust et Blizard Institute, avec 9 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.