Adolescent Perceptions and Barriers for Urological Transition: STREAMWAY Qualitative Study Protocol

Le résumé fourni par la source

Adolescents and young adults with childhood-onset lower urinary tract symptoms (LUTS) face significant challenges transitioning from paediatric to adult urological care, a period often marked by disrupted care continuity, reduced adherence, and psychosocial stress. This transition remains poorly studied in urology. STREAMWAY aims to explore adolescents' perceptions, attitudes, and lived experiences during this phase. This exploratory qualitative study uses semi-structured interviews, supplemented by validated questionnaires, in participants aged 16-25 years with childhood LUTS currently undergoing or having recently completed transition to adult care. The primary endpoint is to map perceptions and experiences of transition, identifying barriers and facilitators to transition success. Secondary endpoints include current urinary symptoms, sleep quality, quality of life, bowel and genitourinary symptoms, and adverse childhood experiences. Approximately 20 participants will be enrolled. Data collection includes pre-interview completion of urological care timelines and growth curves, followed by a 60-minute semi-structured interview and validated questionnaires (ICIQ-MLUTS/FLUTS, ICIQ-LUTSqol, PSQI, EQ-5D-5L, ACE-IQ, CCCS, GUPI). Qualitative data will undergo thematic and interpretative phenomenological analysis; quantitative data will be analysed descriptively, with integration of both findings.

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