Psychosocial Wellbeing Assessment Tools for Children with Cerebral Palsy and Their Families: A Rapid Review

Le résumé fourni par la source

Cerebral palsy is a lifelong motor diagnosis which is primarily associated with impaired movement, balance, and posture. Early intervention programs are widely encouraged to alleviate the physical, psychosocial, social and economic burden of these functional challenges. Despite the benefit of these early interventions, there are no standardised quantitative assessment measures or guidelines as to how to measure the benefits. We conducted and now report a rapid review of the applications of quantitative psychosocial wellbeing assessment tools for children with cerebral palsy under six and their families between 2017 and 2025. This rapid review was done as part of a charity, funded project to measure and assess their early interventions. After searching PsycINFO, Medline, CINAHL databases we identified and extracted data from 113 articles and assessed the utility of 34 free to access psychometric tests identified within them. While this review helped us to identify measures for our charity project, we also identify inconsistencies with reporting theoretical models and the factor validity of current measures, critique the lack of transparency in the data collection procedures reported and commiserate the number of inaccessible, paywalled measures that impair the measurement and assessment of wellbeing of children with cerebral palsy and their families.

Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.