Design, adaptation and content validation of the Sheffield Profile for Assessment and Referral for Care in Colombian Spanish (SPARC-Sp-Col)
Rattachement africain : co, gb, nl. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
BACKGROUND: Palliative Care (PC) aims to improve the quality of life of individuals with life-threatening illnesses through the early identification and management of holistic needs. Many Colombians in need of PC die without having access to it. When we previously adapted and validated the Sheffield Profile for Assessment and Referral to Care for Spanish-speaking populations (SPARC-Sp), users reported unmet needs and challenges in comprehension and self-administration, particularly among those with lower literacy levels. We designed, culturally adapted, and validated a Colombia-specific module, SPARC-Sp-Col, as an enhancement to SPARC-Sp, to better capture the holistic PC needs of Colombian patients. METHODS: We used a five-step qualitative methodology: (1) preliminary adaptation of a Colombia-specific module as add-on to SPARC-Sp for the Colombian context; (2) online expert panel review; (3) integration of feedback and iterative refinement; (4) cognitive interviews with patients; and (5) focus groups with healthcare professionals, patients, and caregivers from across Colombia. RESULTS: The iterative adaptation process led to the refinement of item language for improved clarity and cultural resonance, while maintaining semantic equivalence with its original version. We included 17 new items to reinforce existing domains and a dedicated Colombia-specific module to address unmet local needs (5 of them) including housing conditions, violence and navigating the health care system. The evaluation of the resulting tool, SPARC-Sp-Col, demonstrated good content validity according to Aiken’s V (> 0.5), reflective of feedback from expert consensus, allied and social healthcare professionals, patient and caregivers. CONCLUSIONS: SPARC-Sp-Col is a culturally adapted, content-validated instrument that expands SPARC-Sp by incorporating a Colombian-specific module. It enables a more accurate and context-sensitive assessment of the holistic care needs of cancer patients in Colombia. Its development marks a key step toward improving the timely and equitable delivery of PC in a country where access to appropriate support is often lacking.
Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.
Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Design, adaptation and content validation of the Sheffield Profile for Assessment and Referral for Care in Colombian Spanish (SPARC-Sp-Col)
- Date Crossref
- 21/02/2026
- Éditeur
- Springer Science and Business Media LLC
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Pontificia Universidad Javeriana pays non établi dans la noticeUniversité ou école supérieure
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Queen's University Belfast pays non établi dans la noticeUniversité ou école supérieure
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University of Cauca pays non établi dans la noticeUniversité ou école supérieure
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Erasmus MC pays non établi dans la noticeÉtablissement de santé
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University of Sheffield Department of Oncology pays non établi dans la noticeUniversité ou école supérieure
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Faculty of Nursing Department of Collective Health Nursing pays non établi dans la noticeUniversité ou école supérieure
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Faculty of Science Department of Nutrition and Biochemistry pays non établi dans la noticeUniversité ou école supérieure
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Faculty of Medicine PhD Program in Clinical Epidemiology pays non établi dans la noticeUniversité ou école supérieure
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School of Nursing and Midwifery pays non établi dans la noticeUniversité ou école supérieure
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Erasmus University Medical Center Rotterdam Department of Anesthesiology pays non établi dans la noticeUniversité ou école supérieure
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Faculty of Health Sciences Department of Anesthesiology pays non établi dans la noticeUniversité ou école supérieure
Pontificia Universidad Javeriana, Queen's University Belfast et University of Cauca, avec 8 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.