Accès ouvert déclaré
2026
article
Comparative analysis of inflammatory bowel disease (IBD) patient- and service-reported quality of care using 2019 and 2023 UK benchmarking data from more than 26 000 adult patient respondents and 154 IBD services
A Barney Hawthorne, Paul Christiansen, Ian Arnott, Fraser Cummings, Liz Dobson, Alexandra Kent, Jimmy K Limdi, Robert J Mulligan, Gareth Parkes, Fiona Rees, Christian P Selinger, J Turner, Nathaniel Woo, Lisa Younge, IBD Registry, Contributors to the IBD UK Task & Finish group, Katie Adams, Rachel Ainley, Ian Arnott, Graham Bell, Kathleen Bone, Seema Buckley, Angela Chana, J R Fraser Cummings, Shahida Din, Fiona Eldridge, Jonathan Evans, Melissa Ganendran, Wendi Harrison, A Barney Hawthorne, K Keetarut, Jon Kwok, Christopher A Lamb, Jimmy K Limdi, Charles Maxwell-Armstrong Gayle Martin, Emma Pryde, Nabil Quraishi, Marianne Radcliffe, Jenna Robinson, Ruth Rudling, Christian P Selinger, Esha Sharma, Sarah Sleet, Ben Skipp, Anwen Thomas, Jess Turner, Ruth Wakeman, Catherine Winsor, Sarah York, IBD Service Survey Collaborators, Mostafa Afifi, Lucy Aitchison, Gill Anderson, Gillian Bain, Zahra Bayaty, P Bell, James Berrill, Sophia Bishop, Paul Blaker, Keith Bodger, Dulini Broomhall, Victoria Burn, Jeffrey Butterworth, Vida Cairnes, Rachel Campbell, Julie Carris-Wright, Rowena Castillo, Louise Caulfield, Alex Cheshire, Daljit Chohan, Katie Clark, Katie Clark, Carol Cobb, Josephine Coe, Rachel Cooney, Lourdes Cumlat, Patricia Daly, Anups De Silva, Anjan Dhar, Benjamin Disney, Fiona Donovan, Helen Empson, Aileen Fraser, Aileen Fraser, Becky George, Nivedita Ghosh, Lynn Gray, James Gulliver, Anton Gunasekera, Markus Gwiggner, Sarah Harrison, Virginia Hay, Caroline Hayhurst, Patricia Hooper, Louise Horne, Hasnain Jafferbhoy, Kerrie Johns, Emma Johnston, Karen Kemp, Dawn Kilpatrick, Matthew Kirkbride, Beverley Kirkham, Andrew Kneebone, Ioannis Koumoutsos, Lianne Lewis, James O Lindsay, Amy Lloyd, Caroline Lock, Helen Ludlow, Clare Macpherson, Anne MacRae, Philip Mairs, Gayle Martin, Joy Mason, Kirsten Mccaul, Gordon Mcfarlane, Ross McGettigan, Vidya Morgan, Graham Morrison, Graham Morrison, T Mudege, Ann Muir, Jasbir Nahal, Mark Narain, Ebenezer Nellikunnil, Elizabeth Nelson, Emma Nowell, Arabis Oglesby, JoAnne Owens, Hari Padmanabhan, Lauren Laydon Parkin, Jacqueline Paterson, Polychronis Pavlidis, Simon Peake, Mohammad Farhad Peerally, Kathryn Phillis, Tim Raine, Maxine Rawle, Shuvra Ray, Ian Reilly, Kerry Robinson, Matthew D. Rutter, Linda Samuel Tuck, Glyn Scott, Shaji Sebastian, Caroline Sharratt, Ian Shaw, J Slater, Samuel Smith, Katie Smith, Amudha Somasekar, Sunil Sonwalkar, Seth Squires, Alan Steel, Samuel Sunil, Diarmid Sutherland, Nora Thoua, Diane Upton, Jennifer Veryan, Aldea Waters, Susie Wen, Lydia White, Simon Whiteoak, Sarra Wilcox, Pam Younge, Christopher A Lamb
2Citations signalées — pas une note de qualité
19Institutions déclarées
2Pays d’affiliation déclarés
Résumé fourni par la source
INTRODUCTION: The IBD UK Benchmarking surveys, conducted in 2019 and 2023, collected repeated data regarding the quality of inflammatory bowel disease (IBD) care across the UK using both service self-assessments and patient-reported experience measures (PREMs). We aimed to assess variation between patient and provider perspectives. METHODS: All UK hospitals offering specialist IBD services were invited to complete online surveys. Patients were invited through social media, charities, and clinical services. This study compared changes over the 4 years and examined alignment between healthcare-reported and patient-reported assessments. RESULTS: From 26 760 patient responses and 154 service assessments, patient-perceived care quality (PPCQ) declined between 2019 and 2023 (P < .001). Male sex and older age were associated with higher PPCQ. Greater disease severity was associated with lower PPCQ (P < .001). More patients reported IBD symptoms to impact activities of daily living in 2023 (P < .001). Factors associated with higher PPCQ included rapid diagnosis, being supported by an IBD team, and having knowledgeable IBD nurses. Access, information, communication, and empowerment were identified by patients as needing improvement (P < .001). Services with lowest quartile quality scores in 2019 demonstrated significant improvement over time, whilst those with highest 2019 scores demonstrated significant deterioration in PPCQ (P < .001). Services reported better performance than patients (P < .001). CONCLUSIONS: These data underscore the importance of assessing lived experience and the care quality perception gap between patients and service providers. Regular benchmarking including PREMs should be used to drive and assess service-level, national and international quality improvement initiatives.
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Contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Comparative analysis of inflammatory bowel disease (IBD) patient- and service-reported quality of care using 2019 and 2023 UK benchmarking data from more than 26 000 adult patient respondents and 154 IBD services
- Date Crossref
- 23/01/2026
- Éditeur
- Oxford University Press (OUP)
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude et ne compte pas comme une seconde source scientifique indépendante.
Institutions déclarées
Une affiliation ne permet pas de déduire la nationalité d’un auteur.
Sujets associés
Inflammatory Bowel DiseasePrimary Care and Health OutcomesClostridium difficile and Clostridium perfringens research