Press release guide for genomic research and medicine: a framework co-developed with public contributors in Japan
Rattachement africain : jp. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
Press releases on genomic research play an important role in Japan. Not only do journalists use them as major sources of news stories, but the public also accesses them directly across various media platforms. Given the unique characteristics of genomic information, including ethical implications, it is essential to report research results in a responsible and comprehensive manner. To support individuals involved in communicating such results, we developed a press release guide for genomic research in collaboration with diverse stakeholders, including members of the public. This guide outlines 12 key items for scientific research press releases, five of which are tailored to genomic research: protect personal information; avoid detrimental behavior change; consider individuals involved; avoid prejudice or discrimination; and avoid "genetic determinism." For each item, supplementary explanations and guidance are presented in the form of "Note" and "For Media." Additionally, fresh insights gained through the discussions with the diverse stakeholders are incorporated into a new section titled "From a different viewpoint." Genomic research is increasingly integrated into clinical practice and society, which indicates that reports on genomic studies directly affect a broader audience. Furthermore, enhancing the reporting quality of genomic research is critical because of the distinctive characteristics of genomic information. Our guide provides practical support for those disseminating genomic research results and will be valuable in promoting communication among stakeholders with different roles and expectations.
Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.
Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Press release guide for genomic research and medicine: a framework co-developed with public contributors in Japan
- Date Crossref
- 15/01/2026
- Éditeur
- Springer Science and Business Media LLC
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Tohoku University Tohoku Medical Megabank Organization pays non établi dans la noticeUniversité ou école supérieure
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Tohoku Medical Megabank Organization pays non établi dans la noticeÉtablissement de santé
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University of Tsukuba Hospital Tsukuba Human Tissue Biobank Center pays non établi dans la noticeÉtablissement de santé
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Life Science Institute pays non établi dans la noticeStructure de recherche
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RIKEN Center for Integrative Medical Sciences pays non établi dans la noticeStructure de recherche
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The University of Tokyo The Institute of Medical Science pays non établi dans la noticeUniversité ou école supérieure
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Life Science and Bioethics Research Center pays non établi dans la noticeStructure de recherche
Tohoku Medical Megabank Organization — Tohoku University, Tohoku Medical Megabank Organization et Tsukuba Human Tissue Biobank Center — University of Tsukuba Hospital, avec 4 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.