Transition needs and preferences identified during peer visits to three European best-practice CAYA cancer Long-Term Follow-Up care centres: An EU-CAYAS-NET project
Rattachement africain : nl, at, es, us. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
Background A successful transition from child-centred to adult-oriented healthcare for survivors of childhood and adolescent cancer is essential to help them engage in lifelong surveillance in survivorship care. Information on their needs and preferences for the transition process is needed to identify key components for a successful transition. Objective To describe the transition needs and preferences of young cancer survivors, their parents, and healthcare providers. Methods Three in-person peer visits to best-practice long-term follow-up care centres in Europe were conducted. In these visits, the needs and preferences of young cancer survivors, their parents, and healthcare providers were collected through interactive sessions and structured documentation. The outcomes were analysed inductively using thematic analysis, resulting in a list of unique needs and preferences. Results Sixty-five participants, including 32 survivors, six parents, 21 healthcare providers, and six researchers, shared 188 needs and preferences, leading to the identification of 58 distinct transition needs and preferences. Participants stressed the need for structured, patient-centred transition processes with clear coordination and planning, following a holistic approach. Key support needs include lifestyle, psychosocial, and employment assistance. Improved access to reliable information, tailored education, and readiness-based transfers were emphasised. Conclusion Our findings highlight the need for personalised and ongoing coordination and support for survivors and their families during transition. Strengthening informational and educational transition resources are crucial to address gaps experienced by patients and caregivers. These insights will be implemented into the evidence-based European transition guideline from the EU-CAYAS-NET project.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Transition needs and preferences identified during peer visits to three European best-practice CAYA cancer Long-Term Follow-Up care centres: An EU-CAYAS-NET project
- Date Crossref
- 01/12/2025
- Éditeur
- Elsevier BV
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Princess Máxima Center pays non établi dans la noticeÉtablissement de santé
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Nierstichting pays non établi dans la noticeOrganisation à but non lucratif
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Stichting tot Steun VCVGZ pays non établi dans la noticeInstitution
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Medical University of Vienna Department of Pediatrics and Adolescent Medicine pays non établi dans la noticeUniversité ou école supérieure
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Hospital Sant Joan de Déu Barcelona pays non établi dans la noticeÉtablissement de santé
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Sant Joan de Déu Research Foundation pays non établi dans la noticeStructure de recherche
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CURE Childhood Cancer pays non établi dans la noticeOrganisation à but non lucratif
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Utrecht University pays non établi dans la noticeUniversité ou école supérieure
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PanCare pays non établi dans la noticeInstitution
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Vereniging Kinderkanker Nederland pays non établi dans la noticeInstitution
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Institut de Recerca Sant Joan de Déu pays non établi dans la noticeStructure de recherche
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Youth Cancer Europe pays non établi dans la noticeInstitution
Princess Máxima Center, Nierstichting et Stichting tot Steun VCVGZ, avec 9 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.