Quality-of-life factors at home and in health care settings for people living with dementia

Résumé fourni par la source

BACKGROUND AND OBJECTIVES: Person-centered "home time" measures track time spent in health care versus home using claims data. These measures can indicate patient preferences, quality of care, or quality of life. However, for people living with dementia, these measures lack input from them and their care partners about the impact of different settings. This study explored quality of life factors for them at home and in health care settings. RESEARCH DESIGN AND METHODS: Researchers conducted semistructured interviews with 35 people living with dementia and 46 care partners. Using applied thematic analysis, they developed a content codebook, verified content using NVivo, and categorized themes using Miro. RESULTS: Home time enhanced quality of life through relationships, familiarity, and purpose but required extra support. Health care settings had mixed effects: Benefits included improved health and burden relief, while drawbacks involved care concerns and loss of independence. DISCUSSION AND IMPLICATIONS: Findings highlight key considerations for developing a "home time" measure reflecting priorities for people living with dementia.

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