A global perspective on transitioning from pediatric to adult care in epilepsy
Rattachement africain : ca, us, dk, gb, ro, my, Tanzanie, hk, it, Égypte, au, qa, br, co, fr. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
OBJECTIVE: Transition planning in epilepsy is crucial to ensure continuity of care, particularly for adolescents with complex needs, yet global practices remain undefined. The International League Against Epilepsy Transition Task Force (ILAE TTF) aimed to evaluate worldwide practices, barriers, and provider perspectives on transitioning patients with epilepsy from pediatric to adult healthcare systems. METHODS: A cross-sectional, web-based survey was conducted between August 2021 and March 2024. The 50-item survey, adapted from validated instruments, was distributed in eight languages through ILAE chapters to health care professionals involved in the care of individuals with epilepsy. This study sought to evaluate the availability of structured transition programs, educational and systemic barriers, and recommendations to improve transition. Descriptive statistics, Fisher's exact tests, and multivariate logistic regression analyses were used to compare responses between adult and child neurologists, as well as by country region and income level. RESULTS: A total of 316 neurologists from 58 countries completed the survey. Only 9% reported structured transition programs both locally and nationally, whereas 59% reported none or were unaware of any. Respondents from the Global South were significantly less likely to report transition programs (odds ratio [OR], 0.16; 95% confidence interval [CI], 0.94-0.27; p < .001). Half of the participants believed pediatric teams should continue follow-up after transfer. Major barriers included a lack of financial support, limited transition-specific training, and adult neurologists unfamiliar with childhood-onset epilepsies. Reported patient-educational gaps included vocational guidance (73%), reproductive health (60%), and driving (57%). Recommendations to improve transition included integrating transition training into neurology curricula (87%), creating dedicated clinical structures and care networks (87%), establishing joint consultations between pediatric and adult neurologists (86%), and implementing national guidelines (89%). SIGNIFICANCE: This study demonstrates that epilepsy transition practices remain fragmented and underdeveloped worldwide, especially in low-resource settings. Enhanced training, improved clinical infrastructure, and better policy coordination are crucial to facilitate effective and equitable transitions.
Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.
Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- A global perspective on transitioning from pediatric to adult care in epilepsy
- Date Crossref
- 23/10/2025
- Éditeur
- Wiley
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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University of Toronto Toronto Western Hospital pays non établi dans la noticeUniversité ou école supérieure
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Toronto Western Hospital pays non établi dans la noticeÉtablissement de santé
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University of Calgary Department of Clinical Neurosciences pays non établi dans la noticeUniversité ou école supérieure
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Albert Einstein College of Medicine Department of Neurology pays non établi dans la noticeUniversité ou école supérieure
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Montefiore Medical Center pays non établi dans la noticeÉtablissement de santé
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University of Copenhagen pays non établi dans la noticeUniversité ou école supérieure
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Great Ormond Street Hospital pays non établi dans la noticeÉtablissement de santé
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University College London pays non établi dans la noticeUniversité ou école supérieure
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Carol Davila University of Medicine and Pharmacy pays non établi dans la noticeUniversité ou école supérieure
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University of Malaya Department of Medicine pays non établi dans la noticeUniversité ou école supérieure
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Muhimbili University of Health and Allied Sciences Dar Es Salaam, Tanzanie (code pays fourni par la source)Université ou école supérieure
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Chinese University of Hong Kong Department of Pediatrics pays non établi dans la noticeUniversité ou école supérieure
Toronto Western Hospital — University of Toronto, Toronto Western Hospital et Department of Clinical Neurosciences — University of Calgary, avec 9 autres affiliations. Pays d’affiliation : Tanzanie, Égypte.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.