Increasing awareness of and referral to support services in advanced breast cancer: a global expert review and call-to-action for 2025–2035 (Goal 7)

Le résumé fourni par la source

Advanced breast cancer (ABC) represents a significant global health challenge, not only due to its high mortality rates but also because of the profound physical, emotional, and social burden it imposes on patients. Support services - encompassing psychological, social and peer support, complementary and integrative therapies, wellness and lifestyle support, genetic counseling, survivorship programs, palliative and end-of-life care - are essential to addressing these challenges and ensuring that individuals with ABC receive holistic, person-centered care throughout their disease journey. This manuscript outlines the need for universal access to comprehensive, tailored support services to transform the landscape of ABC care, improve quality of life, and promote health equity globally. It summarizes research conducted for the ABC Global Alliance's Global Decade Report 2.0. The main findings are: a) More than half of people with ABC report never being offered support services; b) Global disparities in ABC support services persist despite policy recommendations from national cancer care plans; c) Global survey data show major gaps in ABC support service referral and utilization; d) Palliative care remains underutilized and often introduced too late in ABC care; e) Despite growth of ABC advocacy groups, healthcare provider referrals are limited. The findings from the ABC Global Alliance's Global Decade Report 2.0 have informed the development of a new ABC Global Charter. The ABC Global Charter 2.0 defines ten new achievable and measurable goals for the decade 2025-2035, aiming at improving the lives of people living with ABC worldwide.

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