”To get my life back” - interview study on restorative surgery decisions after colectomy in ulcerative colitis
Rattachement africain : se, ca. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
Abstract Introduction The purpose of restorative surgery after colectomy is to improve quality of life. Still little is known about patient perspectives. We explored factors influencing UC patients’ choice between restorative procedures and stoma, and their experiences of associated healthcare. Method Semi-structured interviews were conducted with 21 ulcerative colitis patients subjected to subtotal colectomy and either had chosen restorative surgery or a permanent stoma. Participants were recruited from two hospitals within the CRUISE trial. Interviews were conducted in person or via Zoom and analysed using conventional content analysis as described by Elo and Kyngäs. Data collection continued until saturation was reached. Result Twenty-one participants (14 men, 7 women; median age 34) were interviewed 43 months post-colectomy. Analysis revealed three main categories and seven subcategories: (1) Decisive factors in surgical choice, (2) Shared decision-making, and (3) Factors healthcare can influence. Participants emphasized striving for normality and high quality of life, regardless of surgical choice. Informed decision-making and active involvement were central themes. Additionally, the attitude of healthcare professionals, continuity of care, and support structures significantly shaped patients’ perceptions and choices. The findings highlight the complex interplay of physical, psychosocial, and systemic factors influencing surgical decisions. Discussion This study provides valuable insights into the experiences of patients with ulcerative colitis undergoing colectomy. Adequate information, shared decision-making, and striving for normality were central to treatment satisfaction and QoL. A more patient-centred approach may enhance both physical and emotional outcomes by supporting informed, individualized choices in surgical decision-making.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- ”To get my life back” - interview study on restorative surgery decisions after colectomy in ulcerative colitis
- Date Crossref
- 01/08/2025
- Éditeur
- Oxford University Press (OUP)
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Linköping University and Department of Biomedical and Clinical Sciences pays non établi dans la noticeUniversité ou école supérieure
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Engineering Link (Canada) pays non établi dans la noticeEntreprise
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Linköping University Hospital pays non établi dans la noticeÉtablissement de santé
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Karolinska Institutet Department of Molecular Medicine and Surgery pays non établi dans la noticeUniversité ou école supérieure
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Karolinska University Hospital Division of Coloproctology pays non établi dans la noticeÉtablissement de santé
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Department of Surgery pays non établi dans la noticeInstitution
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Department of Gastroenterology pays non établi dans la noticeInstitution
and Department of Biomedical and Clinical Sciences — Linköping University, Engineering Link (Canada) et Linköping University Hospital, avec 4 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.