Affirming and effective sexual orientation and gender identity data collection: barriers, preferences, and recommendations from the community, clinicians, and staff
Rattachement africain : us. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
BACKGROUND: Though sexual and gender minority people experience multiple cancer disparities, they remain largely invisible in oncology clinical care. Despite repeated calls by national medical and oncology organizations to address the lack of sexual orientation and gender identity data, there remains a dearth of information to guide research, clinical care, and creation of national priorities to address important health inequities. We aimed to develop effective strategies to collect sexual orientation and gender identity data within our Midwestern Comprehensive Cancer Center based on barriers and facilitators identified by community members, staff, and clinicians. METHODS: We conducted 5 focus groups of sexual and gender minority and cisgender, heterosexual community members (n = 24). We interviewed clinicians and registration staff across 3 ambulatory cancer clinics (n = 27). Rapid qualitative analysis was used to identify themes from focus groups and interviews. RESULTS: Focus group participants' average age was 37 years with a majority identifying as White (79%, n = 19) and non-Hispanic (92%, n = 22); most participants were women (58%, n = 14) and queer (58%, n = 14). Staff and clinicians' average age was 40 years; most identified as White (82%, n = 22), women (82%, n = 22), and straight (82%, n = 22). Qualitative themes to guide sexual orientation and gender identity data collection included comfort and trust, support services, physical space, training, data collection procedures, data access and privacy, and influence on care. CONCLUSIONS: To encourage patient disclosure, a supportive environment where privacy is upheld and health-care staff are trained to competently interact with lesbian, gay, bisexual, transgender, queer, plus patients is needed. We also share our process of sexual orientation and gender identity data collection implementation at our cancer hospital.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Affirming and effective sexual orientation and gender identity data collection: barriers, preferences, and recommendations from the community, clinicians, and staff
- Date Crossref
- 01/07/2025
- Éditeur
- Oxford University Press (OUP)
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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The Ohio State University Comprehensive Cancer Center – Arthur G. James Cancer Hospital and Richard J. Solove Research Institute Center for Cancer Health Equity pays non établi dans la noticeÉtablissement de santé
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Emory University pays non établi dans la noticeUniversité ou école supérieure
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Woodruff Health Sciences Center pays non établi dans la noticeÉtablissement de santé
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The Ohio State University Nursing Research Department pays non établi dans la noticeUniversité ou école supérieure
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Nell Hodgson Woodruff School of Nursing pays non établi dans la noticeUniversité ou école supérieure
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College of Medicine Department of Internal Medicine pays non établi dans la noticeUniversité ou école supérieure
Center for Cancer Health Equity — The Ohio State University Comprehensive Cancer Center – Arthur G. James Cancer Hospital and Richard J. Solove Research Institute, Emory University et Woodruff Health Sciences Center, avec 3 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.