Healthcare provision for cancer survivors with chronic bowel symptoms post pelvic radiotherapy. “… and then you're kind of cast adrift”: A qualitative study
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Le résumé fourni par la source
PURPOSE: Chronic bowel symptoms are common late-effects of pelvic radiotherapy associated with significantly decreased quality-of-life. For some, perhaps many, people these symptoms may be mitigated or treated, if appropriately investigated and diagnosed. We explored experiences of health service access and provision of support for people with chronic bowel symptoms after pelvic radiotherapy, from the perspectives of cancer survivors and health professionals. Our aim was to highlight processes and contextual factors that may hinder access to effective support and treatment. METHODS: We carried out semi-structured interviews with 28 cancer survivors (14 female) with experience of post-radiotherapy, chronic bowel symptoms, and 19 health professionals involved in the care of such patients. Recruitment was through three NHS hospitals, cancer charities and professional networks. Data were analysed thematically, deductively (guided by the Model of Pathways to Treatment (MPT)) and inductively. RESULTS: We organised data around three overarching themes positioning experiences within MPT's event sequence or describing health system factor. Gratitude for treatment of cancer, embarrassment and acceptance of symptoms led survivors not to seek further care. Health professionals not recognising symptoms or focusing only on discounting cancer recurrence were barriers to effective care for those who sought it. System barriers included professional specialities working in isolation and geographical disparity in availability of late-effects services. CONCLUSIONS: Our findings suggest a need for raising awareness of late-effects of pelvic-radiotherapy among patients and health professionals encompassing recognition of symptoms and awareness of treatments and support and for accelerating access to specialist late-effects services nationally.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Healthcare provision for cancer survivors with chronic bowel symptoms post pelvic radiotherapy. “… and then you're kind of cast adrift”: A qualitative study
- Date Crossref
- 01/06/2025
- Éditeur
- Elsevier BV
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Newcastle University Population Health Sciences Institute pays non établi dans la noticeUniversité ou école supérieure
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Newcastle upon Tyne Hospitals NHS Foundation Trust pays non établi dans la noticeÉtablissement de santé
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London Cancer pays non établi dans la noticeInstitution
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Taunton & Somerset NHS Foundation Trust pays non établi dans la noticeOrganisation à but non lucratif
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Cardiff and Vale University Health Board pays non établi dans la noticeÉtablissement de santé
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North Tees and Hartlepool NHS Foundation Trust pays non établi dans la noticeÉtablissement de santé
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Freeman Hospital Northern Centre for Cancer Care pays non établi dans la noticeÉtablissement de santé
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South Tyneside and Sunderland NHS Foundation Trust pays non établi dans la noticeOrganisation à but non lucratif
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St Mark's Hospital pays non établi dans la noticeÉtablissement de santé
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Cardiff & Vale University Health Board Previously pays non établi dans la noticeUniversité ou école supérieure
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Imperial College London pays non établi dans la noticeUniversité ou école supérieure
Population Health Sciences Institute — Newcastle University, Newcastle upon Tyne Hospitals NHS Foundation Trust et London Cancer, avec 8 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.