Perfil sociodemográfico y evaluación de la calidad de vida en pacientes con nariz hendida: experiencia en centro de referencia de la costa colombiana

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Introduction: Cleft nose, associated with cleft lip with or without cleft palate, is the most common craniofacial congenital defect, occurring in 1:500 to 1:2000 individuals worldwide. This condition may have significant functional and psychosocial implications, yet it is often underestimated in most patients. Methods: An analytical longitudinal prospective observational study was designed to characterize the sociodemographic profile and assess the quality of life in 17 patients with cleft nose who the Otorhinolaryngology Department of the University Hospital of the Caribbean followed. Patient-reported scales NOSE, SCHNOS, and CLEFT-Q were utilized to evaluate nasal obstruction, nasal function, and health-related quality of life. Results: Most patients perceive an acceptable quality of life regarding nasal obstruction and respiratory function, although significant concerns regarding nasal aesthetics were observed. Patients reported a variety of psychological, social, and functional difficulties associated with their condition. Conclusion: This study underscores the complexity of cleft nose and its impact on patients’ quality of life. It provides a solid foundation for comprehensive preoperative assessment and highlights the need for multidisciplinary approaches to addressing these patients’ medical and psychosocial concerns.

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