Assessing the Relevance of the Kansas City Cardiomyopathy Questionnaire in Patients With Tricuspid Regurgitation: The Tri-QOL Qualitative Study
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Le résumé fourni par la source
BACKGROUND: Validly measuring disease-specific health status is critical in patients with severe tricuspid regurgitation (TR) to quantify the benefit of different interventions. The Kansas City Cardiomyopathy Questionnaire (KCCQ) has been used to assess health status in patients with severe TR, but its content validity in this patient population is unknown, including whether additional questions are needed to supplement the KCCQ. METHODS: Twenty participants with symptomatic severe TR from 2 midwestern clinical sites were interviewed in 2023 using a semistructured guide. The interview guide addressed symptoms, physical and social functioning, and quality of life concepts of the KCCQ, as well as other potential TR symptoms not represented in the KCCQ. Interview transcripts were analyzed using inductive and deductive coding and content analysis, with additional participants recruited until thematic saturation occurred. RESULTS: Mean age of the participants was 80 (41-89), and 75% were female. Shortness of breath and fatigue were reported by virtually all participants (n=20 and n=19, respectively) and had a marked negative impact on their physical and social functioning and quality of life. Lower limb edema was also reported by 10 participants. Although these concepts are captured by the KCCQ, other symptoms were also reported, including appetite loss (n=8) and upper body edema (n=4), but did not seem to markedly affect participants' function or quality of life. In addition, all participants who experienced these other symptoms reported symptoms that were already captured by the KCCQ. CONCLUSIONS: All participants experienced symptoms captured by the KCCQ, and these symptoms had a substantial impact on their physical and social functioning and quality of life. Although some participants reported additional symptoms not assessed by the KCCQ, their incorporation would only marginally improve content validity. Thus, the current KCCQ appears to be appropriate for capturing the disease-specific health status of patients with severe TR.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Assessing the Relevance of the Kansas City Cardiomyopathy Questionnaire in Patients With Tricuspid Regurgitation: The Tri-QOL Qualitative Study
- Date Crossref
- 01/04/2025
- Éditeur
- Ovid Technologies (Wolters Kluwer Health)
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Saint Luke's Hospital pays non établi dans la noticeÉtablissement de santé
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University of Missouri–Kansas City pays non établi dans la noticeUniversité ou école supérieure
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Mayo Clinic pays non établi dans la noticeÉtablissement de santé
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Mayo Clinic in Arizona pays non établi dans la noticeÉtablissement de santé
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Mayo Clinic in Florida pays non établi dans la noticeÉtablissement de santé
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United States Food and Drug Administration pays non établi dans la noticeOrganisme public
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St. Francis Hospital pays non établi dans la noticeÉtablissement de santé
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Cardiovascular Research Foundation pays non établi dans la noticeOrganisation à but non lucratif
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Saint Luke’s Mid America Heart Institute pays non établi dans la noticeStructure de recherche
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University of Missouri-Kansas City’s Healthcare Institute for Innovations in Quality (D.M.O. pays non établi dans la noticeUniversité ou école supérieure
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US Food and Drug Administration pays non établi dans la noticeInstitution
Saint Luke's Hospital, University of Missouri–Kansas City et Mayo Clinic, avec 8 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.