Decision-making about palliative sedation for patients with cancer: a qualitative study in five European countries linked to the Palliative sedation project
Rattachement africain : be, gb, es, nl, de, it. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
BACKGROUND: Palliative sedation refers to the proportional use of titrated medication which reduces consciousness with the aim of relieving refractory suffering related to physical and psychological symptoms and/or existential distress near the end of life. Palliative sedation is intended to be an end of life option that enables healthcare professionals to provide good patient care but there remains controversy on how it is used. Little is known about decision-making processes regarding this procedure. The aim of this study was to explore decision-making processes in palliative sedation based on the experiences and perceptions of relatives and healthcare professionals. METHODS: We conducted a qualitative interview study with dyads (a bereaved relative and a healthcare professional) linked to 33 deceased patient with cancer who had palliative sedation, in seven in-patient palliative care settings in five countries (Belgium, Germany, Italy, the Netherlands, and Spain). A framework analysis approach was used to analyse the data. RESULTS: Two main themes are defined: 1) Decision-making about palliative sedation is a complex iterative process, 2) Decision-making is a shared process between the patient, healthcare professionals, and relatives. Decision-making about palliative sedation appears to follow an iterative process of shared information, deliberation, and decision-making. The patient and healthcare professionals are the main stakeholders, but relatives are involved and may advocate for, or delay, the decision-making process. Starting palliative sedation is reported to be an emotionally difficult decision for all parties. CONCLUSIONS: As decision-making about palliative sedation is a complex and iterative process, patients, relatives and healthcare professionals need time for regular discussions. This requires a high level of engagement by healthcare professionals, that takes into account patients' wishes and needs, and helps to facilitate decision-making.
Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.
Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Decision-making about palliative sedation for patients with cancer: a qualitative study in five European countries linked to the Palliative sedation project
- Date Crossref
- 21/12/2024
- Éditeur
- Springer Science and Business Media LLC
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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KU Leuven pays non établi dans la noticeUniversité ou école supérieure
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Lancaster University pays non établi dans la noticeUniversité ou école supérieure
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Navarre Institute of Health Research pays non établi dans la noticeUniversité ou école supérieure
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Universidad de Navarra pays non établi dans la noticeUniversité ou école supérieure
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Radboud University Nijmegen pays non établi dans la noticeUniversité ou école supérieure
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Radboud University Medical Center pays non établi dans la noticeOrganisme public
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University Hospital Bonn Department of Palliative Medicine pays non établi dans la noticeÉtablissement de santé
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La Maddalena pays non établi dans la noticeÉtablissement de santé
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Katholieke Universiteit Leuven Department of Oncology pays non établi dans la noticeUniversité ou école supérieure
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Faculty of Health and Medicine International Observatory On End of Life Care pays non établi dans la noticeUniversité ou école supérieure
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IdISNA- Instituto de Investigación Sanitaria de Navarra. Palliative Medicine pays non établi dans la noticeStructure de recherche
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Institute for Culture and Society-ATLANTES pays non établi dans la noticeStructure de recherche
KU Leuven, Lancaster University et Navarre Institute of Health Research, avec 9 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.