Barriers to Caregiver preparedness from the perspective of family caregivers and healthcare providers of people with schizophrenia: A qualitative study

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Barriers to Caregiver preparedness from the perspective of family caregivers and healthcare providers of people with schizophrenia: A qualitative study F amily-centered care is a holistic approach focusing on respectful communication between patients, their family caregivers, and health-care providers.[1] Since the deinstitutionalization movement shifted care from the hospital to the home, this method has become more common.Family caregivers' needs for welfare services, financial assistance, and support increased.[2] In developing countries like Iran, the lack of support and community-based services makes the condition much more exhausting for people with chronic mental illness and their families.[3] One of the most severe, debilitating, and chronic mental illnesses is schizophrenia.People with schizophrenia suffer from the most challenging symptoms, such as paranoia, disorganized speech or behavior, hallucinations, delusions, and cognitive impairment.These symptoms affect both their lives and their families.[4,5] Caregiving for people with schizophrenia leads to the loss of social function, changes in communication patterns, creates job problems, and ultimately imposes a heavy burden on families.[6] Overall, families' lack of emotional, financial, and Objectives: Caring for people with schizophrenia is the most challenging condition for their families.Family caregivers encounter broad-spectrum problems by a lack of caregiving preparedness.Therefore, this study aims to identify the barriers to caregiving preparedness from the perspective of family caregivers and health-care providers of people with schizophrenia.Methods: Twenty semi-structured interviews were conducted by nine family caregivers and four health-care providers of people with schizophrenia selected by purposive sampling in Iran.After explaining our goals and obtaining permission, we recorded their voices, transcribed them for each session, analyzed them, and evaluated their trustworthiness.Results: The theme of "Barriers to caregiver preparedness" emerged from the data in three main categories: Encountering the crisis of the unknown, mental health inequalities in society, and role confusion.Conclusion: These findings highlighted the contextual factors that result in family caregivers' unpreparedness.Identifying these factors can help the healthcare providers appraise the caregivers for later interventions and assist the health policymakers in overcoming these barriers.

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