Quality of life among parents of Thalassemic Children in Eastern India

Résumé fourni par la source

Background: Thalassemia imposes persistent stress on the parents of thalassemic children because of realization of the adverse consequences with resultant psychological problems. Objectives: To assess the quality of life (QOL) in respect of physical, psychological, social and environmental domains among parents of thalassemic children and to identify the factors related to their QOL. Methods: An institution-based descriptive cross-sectional study was conducted in Thalassemia clinic of Bankura Sammilani Medical College and Hospital, West Bengal, during July 2016 - June 2017. Ninety six study participants were selected by systematic random sampling. WHO Quality of Life (WHOQOL) Bref Version was used for assessment of Quality of life. Pearson correlation coefficient, unpaired t-test, ANOVA, multiple linear regressions were performed using SPSS 22.0 version. Results: Most of the participants (55.2%) belonged to 21-30 years age group, were female, Hindu, from rural area and of lower socio-economic status. The mean score of overall QOL was 78.57 ± 9.8 (Mean ±SD). Median score in psychological domain was the lowest domain. Overall QOL score was positively associated with educational level, occupation and SES. Conclusion: Along with medical management for thalassemic children, the psychological well-being of their parents should also be taken care off.

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