From pelvic radiation to social isolation: a qualitative study of survivors’ experiences of chronic bowel symptoms after pelvic radiotherapy
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Le résumé fourni par la source
PURPOSE: We explored survivors' experiences of chronic bowel symptoms following pelvic radiotherapy, strategies employed in living with these symptoms, effects on daily activities, and roles at home and in the workplace. METHODS: Semi-structured interviews were conducted with 28 individuals (10 gynaecological, 14 prostate, four anal/rectal cancer survivors) who had completed pelvic radiotherapy at least six months prior to data collection and who had experience of bowel symptoms during this post-treatment period. Reflexive thematic analysis was undertaken. RESULTS: We propose four themes describing a process leading from experience of symptoms to withdrawal from activities and roles. These are (1) losing control (the experience of unintended anal leakage or discharge); (2) experiencing embarrassment and fear (the experience of embarrassment or fear of embarrassment as a result of discharge becoming public); (3) managing and reacting (acting to reduce the likelihood of discharge or to prevent this becoming public); and (4) restriction and withdrawal (avoiding specific activities or situations so as to reduce or remove the risk of embarrassment). Returning to the workplace presented additional challenges across these themes. CONCLUSIONS: Impacts of chronic bowel symptoms can be severe. Survivors employ a variety of methods and strategies in living with their symptoms. Some of these support continued role fulfilment but some constitute a withdrawal from pre-treatment roles. Current healthcare provision and statutory protections fail to fully meet needs following pelvic radiotherapy. IMPLICATIONS FOR CANCER SURVIVORS: There is a need to develop and implement evidence-based services and supported self-management programmes for survivors experiencing chronic bowel problems post-radiotherapy.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- From pelvic radiation to social isolation: a qualitative study of survivors’ experiences of chronic bowel symptoms after pelvic radiotherapy
- Date Crossref
- 06/01/2024
- Éditeur
- Springer Science and Business Media LLC
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Newcastle University Population Health Sciences Institute pays non établi dans la noticeUniversité ou école supérieure
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Newcastle upon Tyne Hospitals NHS Foundation Trust Northern Centre for Cancer Care pays non établi dans la noticeÉtablissement de santé
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London Cancer pays non établi dans la noticeInstitution
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Taunton & Somerset NHS Foundation Trust pays non établi dans la noticeOrganisation à but non lucratif
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Somerset NHS Foundation Trust pays non établi dans la noticeÉtablissement de santé
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North Tees and Hartlepool NHS Foundation Trust pays non établi dans la noticeÉtablissement de santé
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Cardiff and Vale University Health Board pays non établi dans la noticeÉtablissement de santé
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South Tyneside and Sunderland NHS Foundation Trust Department of Gastroenterology pays non établi dans la noticeOrganisation à but non lucratif
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Royal Marsden NHS Foundation Trust pays non établi dans la noticeÉtablissement de santé
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Cardiff & Vale University Health Board pays non établi dans la noticeUniversité ou école supérieure
Population Health Sciences Institute — Newcastle University, Northern Centre for Cancer Care — Newcastle upon Tyne Hospitals NHS Foundation Trust et London Cancer, avec 7 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.